“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity
Thursday, May 31, 2012
Tuesday, May 29, 2012
Tuesday, May 22, 2012
Chanelle hits the news again

May 8, 2012 12:10 am
![]() Chanelle Felder's struggle with Cushing's syndrome prompted her to pursue a career as a patient advocate. ![]() Felder took ballet in 2008, during her fight with disease. ![]() Chanelle Felder battled cyclical Cushing's syndrome in high school. She graduates from Germanna Community College this week and is preparing to pursue a bachelor's degree at a Virginia university this fall. |
By PAMELA GOULD
Chanelle Felder found her mission in life through the mysterious illness that left her mind in a fog, her body bloated and her high-energy lifestyle on hold.
"I was directionless before," the 22-year-old said. "Now I have a laserlike focus on what I want my legacy to be and what I want to get out of life."
Felder, who graduates from Germanna Community College on Wednesday, was 16 when her slender 5-foot, 7-inch frame started expanding inexplicably.
She began having crying spells, waking in the middle of the night, and suffering numbness and pain in the feet that for years had carried her gracefully across dance floors.
Clumps of hair started falling out, she became sluggish, and her normally sharp mind started going blank.
Felder was a Mountain View High School junior, cheerleader and honors student when the symptoms began. She found them shocking and frightening.
Doctors offered possible diagnoses such as a thyroid disorder, but none fit until the North Stafford teen stumbled upon a program on the Discovery Health channel.
"My turning point was an episode of 'Mystery Diagnosis,'" she said.
A woman named Sharmyn McGraw was describing the symptoms of Cushing's disease. Felder immediately saw her own situation.
She went online, did research and told her parents that's what she had. The rare disorder afflicts 10 to 15 of every 1 million people. It's even rarer in children and adolescents.
Though her parents supported her self-diagnosis, doctors were slower to get on board. But after medical tests confirmed it, she underwent brain surgery in September 2007.
That first surgery removed a benign tumor from her pituitary gland. However, the symptoms returned, prompting a second brain surgery to remove more tumors in January 2009.
It turned out that she had cyclical Cushing's syndrome, a condition in which the symptoms disappear and then return.
When the second surgery didn't resolve the problems, Felder opted to have both adrenal glands removed in April 2010.
That procedure eliminated the Cushing's symptoms because it's driven by the hormones produced by those glands, which sit atop the kidneys.
But removal of the adrenals meant she was without the hormones they produce, which, among other things, help people cope with stress.
She now takes four medications daily to regulate her endocrine system and keeps a close watch on her stress level. But her bubbly personality and energy are back.
MOVING FORWARD
Felder graduated from Mountain View High in June 2008, nine months after her first surgery.
Then, on a doctor's advice, she waited a year to start college.
Her parents urged her to ease into her courses, so it's taken her three years. However on Wednesday, Felder will walk across the stage at the Fredericksburg Expo and Conference Center to receive her associate degree in arts and sciences.
"She's been inspirational to other students," said Judi Johnson-Bartlett, coordinator and student adviser at Germanna's Stafford Center.
Johnson-Bartlett rattled off adjectives to describe Felder: determined, hard-working, dedicated, persistent. "The sky is the limit for her."
Felder majored in science while taking classes on the Germanna campus in Spotsylvania County and at the recently opened Stafford Center.
She frequently drew on her experience for class projects and presentations.
The time spent researching her diagnosis and staying abreast of the steps in her treatment gave her an understanding of medical science and terminology she wouldn't have learned otherwise.
It also redirected her interest from a career in social work to one in which she plans to serve as a patient advocate.
If it hadn't been for a dash of teenage defiance, the support of her parents, and the prayer and encouragement of people at Mount Ararat Baptist Church, Felder said, she'd probably still be suffering.
That's why she wants to study the dietetic field next fall when she attends Virginia Tech or James Madison University and why she's also interested in communications.
"My ultimate legacy will be to get information out about this disease and about other diseases like this," Felder said.
She also wants to provide the support for others that she received during her medical ordeal.
She's already part of an online network of Cushing's patients who share their stories; some of them have been heartbreaking.
She said some people have been ostracized by relatives who don't understand their symptoms, or worse yet, suggest they're lying and just lazy when their weight balloons and they lack energy.
Others have died from symptoms related to the disorder.
Many, she said, just resign themselves to a life of suffering after medical professionals brush off their symptoms or aren't familiar with the disorder.
Felder said her mission crystallized as a result of Facebook communications with a man in California with Cushing's syndrome.
She shared the treatment she'd undergone, and in her he found hope and committed to the same path.
He underwent surgery and messaged her recently to say, "You saved my life."
Felder became teary as she shared that encounter.
"Just to think I was just a 16-year-old girl. For me to go through that and actually help someone, it made me see it wasn't in vain," she said, pausing to keep her composure.
"That's why I went through it--to help people."
Germanna Community College will hold its spring graduation ceremony at the Fredericksburg Expo and Conference Center on Wednesday at 7 p.m.
Chanelle Felder is scheduled to sing the national anthem as part of the commencement exercises.
Copyright 2012 The Free Lance-Star Publishing Company.
A special thanks to Pamela Gould (540/735-1972, pgould@freelancestar.com) for the excellent story.
Tuesday, May 15, 2012
Cushing's Support Group
Professor of Neurosurgery and Medicine
Medical Director, Pituitary Center
Tuesday, June 5, 2012, 6-8pm
Stanford Advanced Medical Center
2nd floor conference room CC2105
875 Blake Wilbur Drive
Stanford, CA 94305
Please rsvp to Danielle Ziatek
email: dziatek@yahoo.com
Light refreshments will be provided.
Monday, May 14, 2012
Day 14: Around the Cushie World in 30 days -- AI
Sunday, May 13, 2012
Day 13: Around the Cushie World in 30 Days
Saturday, May 12, 2012
Day 12: Around the Cushie World in 30 Days-- April Fool
Friday, May 11, 2012
Day 11: Around the Cushie World in 30 Days-- Diagnosis
Thursday, May 10, 2012
Day 10: Around the Cushie World in 30 Days
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For today's trip, we visit Robin again. She asks, Why do we overeat? Underexercise? Is it a matter of willpower?
I'd like to talk to you a bit about what it is like with Cushing's high cortisol surging through one's system and the hunger it brings.
Wednesday, May 9, 2012
Day 9: Around the Cushie World in 30 Days-- MaryO
"It's about time there is some support for Cushing's."
Tuesday, May 8, 2012
Day 8: Around the Cushie World in 30 days-- ALICIA
Monday, May 7, 2012
Day 7: Around the Cushie World in 30 Days--How I'm a Better Person Now
Sunday, May 6, 2012
Day 6: Around the Cushie World in 30 Days~Danielle
Saturday, May 5, 2012
Day 5: Around the Cushie World in 30 Days~ eHow is an eDon't
In her post entitled eHow is not for medical advice!, Jessica takes on a person who purports to know enough about Cushing's to write an article telling others how to get rid of it. Jessica brilliantly dismantles each false assumption and asks the author to revise the falsehoods about Cushing's
Bravo, Jessica. Bravo.
Friday, May 4, 2012
Day 4: Around the Cushie World in 30 days: Ashley's Pituitary Surgery

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end of December 2010 ------------------------- April 2012 |
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my buffalo hump |
Thursday, May 3, 2012
Off The PNA Press
Off The PNA Press: Psychological Manifestations of Pituitary Disease
Editor’s note: This is an introduction to a lecture given by Dr. Michael Weitzner. It makes many of the points that the PNA strives to promote.
The objectives of this lecture are to provide an overview of the psychological and neuropsychiatric problems faced by patients with pituitary disease, the impact on family, and the options for treatment.
Cushing, himself, believed that there was a need to differentiate the psychological effects that resulted from the pituitary tumor from those that resulted from the stress of illness. It is now recognized that the hypothalamic-pituitary axis is not only an integral element in the expression of behavior, but also an essential part of the limbic system which controls our emotions.
Many patients with pituitary tumors develop an apathy syndrome which is the result of this interplay between the limbic system and the hypothalamic-pituitary axis. An important task is the differentiation of this apathy syndrome from other psychiatric disturbances which are also seen in patients with pituitary disease. It is well recognized that depression and anxiety are present in many patients with hyperprolactinemia and Cushing’s disease. Personality change and anxiety are commonly seen in patients with acromegaly and hypopituitarism. There are several options for treatment, both pharmacological and psychological. One element that is unfortunately ignored in this illness is the effect on the family. Effective treatment of the patient with pituitary disease included treatment of the family.
Michael A. Weitzner, M.D.
Department of Psychiatry
University of South Florida
Tampa, Florida
Day 3: Around the Cushie World in 30 Days~10 Things I Can't Live Without
Wednesday, May 2, 2012
Day 2: Around the Cushie World in 30 days~Let's Talk about our Bodies
Day 1: Around the Cushie World in 30 days~Things Cushing's has Stolen from Me
This month, I wanted to share with you a few of the posts that caught *my* eye and touched my heart. I wanted to share with you the best the Cushing's bloggers have to offer.
Having Cushing's is like being on the dark side of the moon. We are always up at night and rarely feel like we get up on the right side of the bed. There is very little light in our worlds. Even under the moonlight's glow. It's a cold, lonely place.
Tuesday, May 1, 2012
Happy Birthday Rieger kitty
This is newsworthy to include on my Cushing's blog because my husband bought him for me in 2007, just month's after finding out that Cushing's was the enemy. Husband had read that pets help patients with depression, and I was facing the worst of my depressive symptoms at that time. Soon, we searched the Internet to find one that wouldn't make us allergic. This is what we found: a gorgeous Siberian kit cat, new to the US in 1990.
http://www.cfa.org/client/breedSiberian.aspx
After avoiding cats for my entire life, I now fancy them, well, one in particular.
Happy 5th birthday, my sweet kitty cat Rieger. Our family wouldn't be the same without you.
With love,
Mama and family
P. S. 'Scilla Presley spent a lot of time getting her eyeliner to look like this!