ASSIGNMENT 13: The 'pain' of feeling caught in the middle
“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity
Friday, April 25, 2014
Cushing's Awareness Month: A Pain to Treat
Monday, April 21, 2014
Cushing's Awareness Month: It's Not our Fault
Cushing's Awareness Month: Why Doctors Don't Know
Why Doesn't My Endocrinologist
Know All of This?
Sunday, April 20, 2014
Cushing's Awareness Month: How do I partner with my doctor
5 Things to Do When Symptoms Are Not 'All in Your Head'
Saturday, April 19, 2014
Cushing's Awareness Month: Notes from a Neurosurgeon
Dr. McCutcheon is a wonderful neurosurgeon. He performed my second pituitary surgery.
Dr. McCutcheon has helped many Cushing's patients by understanding the disease and listening to his patients.
Dr. McCutcheon is a professor at world-renowned MD Anderson Cancer Center located in Houston, TX.
Friday, April 18, 2014
Cushing's Awareness Month: When the "gold standard" becomes tarnished
Robin, blogger at http://survivethejourney.blogspot.com, wrote the post that is true today as it was all those years ago (sadly.)
Cushing's Awareness Month: Diagnosis is not as easy as it seems
Cushing's Awareness Month: Pituitary & Adrenal Glands
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Thursday, April 17, 2014
Cushing's Awareness Month: Cushies Care
Wednesday, April 16, 2014
Cushing's Awareness Month: My Life is a Delicate Balance
Before we get the article, let's be clear. This article is just another example of what we Cushies already know. Medical expertise about our conditions, Cushing's and adrenal insufficiency, is limited, even in the emergency rooms meant to save everyone. We know that doesn't apply to us. We are bombarded with weekly stories detailing horrible treatment at the hands of ER doctors and nurses. Even with an unhelpful doctor, a family member or friend can be the difference, the force that demands attention to our plight.
This is why I am so passionate about advocating for Cushing's Awareness and educating Cushies and their families about the dangers of adrenal crises. I do this as I struggle and because I struggle to deal with the complacency of my own.
I'm confounded as to why family and friends around me aren't too startled or concerned when I say I could die if I forget a dose of medication or if a physical or emotional stressor is more than the medication I consumed for the day.
Can we count on you to do that?
The patient shows no signs of waking. The crew clears the airway and administers oxygen. An IV is established, and the patient is readied for transport. As the crew leaves the scene, one of the medics turns to shut the door and sees a vial under a chair. He retrieves it and notes that the label says Solu-Cortef (a glucocorticoid). He bags it for the emergency department (ED). Following his instinct, he looks around the area for medications and finds two bottles. One is labeled dexamethosone and the other is labeled fludrocortisone. He takes his findings and rushes out the door into the awaiting ambulance. During transport, the patient continues to deteriorate.
On arrival to the ED, the medic hands over the loaded syringe containing 2mL of unidentified solution, as well as the empty vial of Solu-Cortef and the bottles of dexamethosone and fludrocortisone.
Cushing's Awareness Month: Thanks but No Thanks
Robin, the Cushie survivor who blogs at http://survivethejourney.blogspot.com, created all the graphics for us to share during Cushing's Awareness Month. Thanks Robin!
Friday, April 11, 2014
Cushing's Awareness Month: Degree of Difficulty
Wednesday, April 2, 2014
Cushing's Awareness Day 2: Depression Cloud Follows Cushies
I logged onto my online Cushing's group tonight.
to another day of sickening thoughts and silent criesMy mind awakes once more to realizeI must face yet another day of struggling to surviveThe pain sets in and the unrealistic, realistic thoughts pour inI cannot concentrate, focus, just sit and wonder how to beginTo get back the life I once had, so normal and trueLoving family surrounding, yet none with a clueFilled with disease my body began to failTo disintegrate, fall apart and become frailAway from reality, family and friendsIts taken me to hell without any endI've lost my life, my friends are fewFamily doesn't understand, as white trash I am viewedI don't want to go on, each night I lay my headI pray I'll just sink into the ground because I feel I am already dead.
Tuesday, April 1, 2014
Post #1: Chronic Pain and Incertainty
Cushing's Awareness Month
One of my favorite times of the year.
Although many celebrate one day of Cushing's awareness centered upon Harvey Cushing's birthday on April 8th, it is my goal to see April celebrated as Cushing's Awareness Month.
We need the chance to educate and advocate.
We need the support of those who surround us every day.
We need to reach all of the undiagnosed souls seeking answers in uncertain times.
We need the chance to stand up as survivors, hold hands, and say, Yes! We made it through another year.
April has become a very important time of the year for me, as a Cushing's survivor, and I hope you enjoy what's pops up this month. It will be a surprise to all of us, since even I don't know what I will say in 30 posts in April. ;)
Stick around. It will be fun for all of us.
PS Special thanks to Robin for designing the Cushing's Awareness logo. She blogs at http://survivethejourney.blogspot.com/
PS2 Look how honest I am. I'm
Not even gonna count this as my first real post. I'll do 31 posts in April, and I will like it! So will you. :)