Thursday, July 16, 2009

ORGANIZATION MOXIE: Where the Rubber Meets the Road

Hi everyone.

The wean is slow but going okay. I am 5 weeks post op today. My dose of hydrocortisone is 15 mg @ 8 am and 5 mg @ 3 pm. I see my neurosurgeon and endocrinologist for a follow up next Thursday. I have been keeping track of my doses and symptoms in a spreadsheet. When I get time, I will post it here, in case it will be helpful for anyone to see how my doctors and I handled it. If it never appears, feel free to remind me!

Also, I wanted to let you all know that I have been getting myself organized lately. Nothing like finally getting papers filed after over a year! (not that I had a good excuse or anything...). I am trying to get my home office paperwork filed electronically, and it is a huge but worthwhile undertaking. I am not finished yet, and I have been working on it for a week. Wish me luck!

So, along with this new found need to organize finally, I want to be better about answering questions that you readers may have. I wanted to let you know that I am now in a better position to answer any emails that you send me. Before, I was completely overwhelmed with Cushing's and my sweet baby. Now after surgery, I feel I have things under control, well, more than I did. I have an iPhone (greatest invention ever--it's a computer in the palm of your hand!), and this allows me to check email every few days without getting on my laptop. With a baby in my arms most of the day, this is a wonderful addition to my toolbox.

As always, if you want to post a comment, feel free to do so. I welcome and encourage that. Please be forewarned that I like to publish your stories to show others how this disease sneaks up on us.

If you have a specific question, please ask it in the comments section, include your email address, and I will be sure to reply to you via email. If it is ok, I would like to post all incoming emails to my blog in the comments section, and if you include your email address, I will just cut and paste your message and post it under comments myself. That way, I will not post your email address publically.

For direct access, my email address is moxiemelissa then at symbol (I am trying to avoid spam by not posting the email addy here).

Anyway, I better scoot. Take care. I hope everyone is doing ok.

~Moxie Melissa