Monday, October 28, 2013
Thursday, October 10, 2013
This mom is fighting to make it happen. Rachel, a British mother, desperately wants her child and family to have an easier way to administer emergency cortisol injections--like Solu-Cortef for her 14 year old daughter with hypopituitarism. Her daughter doesn't make any cortisol and relies on replacement steroids, like Addison's patients or Cushies after pituitary surgery or bilateral adrenalectomies.
Please read their story and consider signing the petition.
If you live in the United Kingdom, please sign this petition:
If you live elsewhere in the world, please sign this petition via facebook:
Sunday, October 6, 2013
For editorial see page 3974
- bilateral adrenalectomy
- bilateral adrenal hypercortisolism
- Cushing's disease
- Cushing's syndrome
- ectopic CS
- Nelson's syndrome
- quality of life
- transsphenoidal surgery.
- Received February 21, 2013.
- Accepted August 5, 2013.
- Copyright © 2013 by The Endocrine Society
Friday, October 4, 2013
MUM Rachel Pegler has issued a heartfelt plea to SNJ readers to back a petition for health bosses to create an injection pen which could save her little girl's life.
Brimscombe schoolgirl Molly, 14, suffers from a rare condition called hypopituitarism, which can be fatal if levels of the hormone cortisol drop too low and she does not receive an injection in time.
She cannot leave the house without a life-saving kit that contains a syringe, needles and vials of hydrocortisone and her teachers at Thomas Keble School have been trained to give the jab.
Rachel is urging medical bosses to create an 'epi-pen' for this type of illness, which would enable Molly to administer her own injection in an emergency.
She has launched an online petition to get the issue raised in Parliament, which has already attracted more than 2,000 signatures.
"We currently have a very outdated style injection," said Rachel, an artist and illustrator.
"I worry that when alone and close to unconscious my little girl would not even be able to take the top off the glass tube.
"An injection pen could mean life or death."
Cortisol is a chemical hormone produced by the body to manage stress by providing a boost of blood sugar.
When Molly becomes stressed or unwell she is unable to produce enough cortisol and has to rely on extra steroids, which she takes three times a day.
If she is sick or suffers any trauma or injury she needs an emergency injection and hospital treatment.
Molly, who has an older brother Josh, 19, and younger sisters Poppy, 10, and Primrose, one, also has other health problems, which affect her immune system.
"Ultimately I would like my little girl to finally have a normal life," said Rachel.
"Molly is the most cheerful lovely girl. She loves writing scripts and fiction.
"It is such a strain on all of us when she is poorly, we all find it very hard.
"Molly has gone through so much and deserves the knowledge that no mistakes will be made in saving her life in an emergency situation."
To sign the petition go to http://tinyurl.com/o2dwoxp
© Copyright 2001-2013 Newsquest Media Group