Friday, April 23, 2010

CUSHIES SET THE RECORD STRAIGHT: Patients Become the Experts without the MD

Patients know more than most doctors do about Cushing's.

I was tickled pink to find this Google Knol page on Cushing's Disease/Syndrome and related endocrine disorders.

It is fantastic.  Why?  It is written by Robin from the Cushing's message boards, with help from the tenacious MaryO.

After testing for Cushing's for over 3 years, I learned a lot from the information posted on that page.  The best part is that everything is in one place, with lovely links to medical literature and diagrams that spell it all out so clearly. Essential for our routine tete a tetes with our dear, sweet endocrinologists.

In addition, I want to draw your attention to a new blog that Robin has created to show how Cushing's affects her life every day.  I bet you will find Robin's 365 Days with Cushing's Disease blog insightful.

I appreciate all of your inventive work, Robin and Mary.  Thank you again for everything.