Tuesday, February 12, 2013

Persistent Cushing's

Treatment of Cushing's Disease if Surgery Fails

"Bilateral adrenalectomy is usually reserved and employed as a last resort when all else has failed and the patient is in grave danger due to the consequences of high cortisol levels. However, the success and relatively low risk of complications of laparoscopic bilateral adrenalectomy prompts us to reconsider our attitudes towards adrenalectomy in patients with residual and recurrent Cushing's disease. Perhaps adrenalectomy should be employed earlier in the course of treatment of patients with refractory Cushing's disease."

Guidelines for Doctors and their Patients who have Residual Cushing's Disease

Lewis S. Blevins, Jr. MD and Gwen Stanhope, PA-C

California Center for Pituitary Disorders at University of California, San Francisco 


Monday, February 11, 2013

Patient's Symptoms Of Cushing's Disease Beginning To Abate After Endoscopic Pituitary Cure

Another patient's tale of ofd symptoms, misdiagnosis, and surgical path in hopes for a cure.

Thanks for sharing your story, Kathie.


Extrapituitary Parasellar Microadenoma in Cushing’s Disease

These articles about pituitary tumor tissue located outside the pituitary really make me suspicious about what could be source of my uncured Cushing's.

Extrapituitary Parasellar Microadenoma in Cushing's Disease

Tuesday, February 5, 2013

The Science of Stress

This Oprah article could easily be entitled: 

The Science of Stress:
5 Things Cortisol is Doing to Your Body

It is all here, in black and white. 

Yet we Cushies suffer in a waiting game for treatment--whether it is our first, second, third, or FOURTH (mine) line of treatment. 

Our bodies are breaking down. 

We are literally losing our minds -- cognitively and emotionally -- as we live each day in a broken body with no end date to look forward to, no time limit to endure. The struggling and suffering is endless. It is heartbreaking.


The Science of Stress: 5 Things Worrying Is Doing to Your Body