*Thank you to MaryO, founder of www.cushings-help.org, for creating this series of podcasts.
“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity
Wednesday, October 25, 2017
Adrenal Crisis & BLA
Take a listen to JenS as she describes her Cushing's journey and adrenal crisis.
Labels: adrenal crisis, adrenal insufficiency, BLA
Saturday, October 21, 2017
Addison’s Mum, 44, died after antibiotics don’t control UTI
Sarah Ann Parr, 44, wife and mum of two felt faint and dizzy after a family walk. She had taken antibiotics for a urinary tract infection (UTI), yet the medication failed to treat the infection.
For all you BLAers and post op Cushies, WATCH OUT for any infection that can whittle down the cortisol you take daily. The body uses cortisol to fight infections, so it will use up the medication you take orally, leaving you without enough to sustain vital bodily functions like maintaining blood pressure and metabolism.
Rest In Peace, Sarah.
You are gone but will not be forgotten. ❤️
Sarah and her family also went on a walk up Moel Famau in Wales, United Kingdom.
Distance: 5.9 Kms/ 3.67 miles
Ascent: 298 metres
Time: 2 hours
Start and Finish: Moel Famau Car Park
A hike or any such physical activity would also require a patient with adrenal insufficiency to take more cortisol to cover the "work" the body must do to climb up the hills. This physical exertion plus fighting a UTI and E. coli was just too much for Sarah's body to handle.
The Matchstick Theory
Like many Cushies and folks who struggle with chronic disease daily, I've heard of the spoon theory. Some people love it and go ga ga for it.
Me: Meh. 🤷🏽♀️
I mean I get it.
I agree with it.
It just doesn't describe how my days usually go and the multitude of nuanced choices I must make each day.
Tonight, I found my new substitute spoon theory! I proudly bring you the Matchstick Theory.
Labels: coping with Cushing's, spoon theory
Friday, October 13, 2017
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