Thursday, February 13, 2020

Get Connected: Facebook groups

Fight Cushing's with moxie is difficult. We have to surround ourselves with people who know what it's like and how to help us. One of the best Cushing's resources is our local, state, regional, and country groups on Facebook. Are you a member of yours?

Local groups are also a great resource to:
1) find a helpful doctor (and know who to avoid)

2) meet local Cushies who empathize and understand. Cushing's makes Cushies isolated and lonely.

3) create Cushing's awareness projects in your community

4) ask for help when ER docs aren't following protocol for treating adrenal insufficiency and adrenal crisis.

** BUILD YOUR SAFETY NET **

We have links to all known Cushing's groups below. Special thanks to Samantha B. for gathering helping to gather these links and developing this project.

Please help us guide our Cushie friends to these local groups, because we are in the business of saving lives. To tag a group in a FB post, simply type the @ symbol then the name of the group, select the group from the drop down menu. It will appear in your comment hyperlinked to the group. So easy!

** STAGE OF DISEASE (members as of post)**

Post Op Cushies (324)
https://www.facebook.com/groups/403657143415790/

Cushing's Recovery _ Don't Stop Believin' (992)
https://www.facebook.com/groups/CushingsRecovery/

Life after BLA (375)
https://www.facebook.com/groups/lifeafterBLA/

Parents of Children who have Cushing's (275)
https://www.facebook.com/groups/Cushings.Parents.MAGIC/

Cushies with Service Dogs (233)
https://www.facebook.com/groups/121659931780658/

** REGIONAL CUSHING'S GROUPS (members as of post)**

Midwest Cushies (33)
https://www.facebook.com/groups/142993276393687/

New England Cushies (36)
https://www.facebook.com/groups/178707342899340/

Pacific NW Cushies (73)
https://www.facebook.com/groups/662966240760256/

Southern Cushies (9)
https://www.facebook.com/groups/1637295636360624/

** CUSHING'S STATE GROUPS (members as of post) **
Alabama Cushies (9)
https://www.facebook.com/groups/559002207774956/

Alaska Cushies (3)
https://www.facebook.com/groups/210351299542355/

Arizona Cushies (23)
https://www.facebook.com/groups/1973528976244469/

Arkansas Cushies (11)
https://www.facebook.com/groups/965682310254245/

California Cushies (88)
https://www.facebook.com/groups/1953383821355772/

Colorado Cushies (19)
https://www.facebook.com/groups/194795651255343/

Connecticut Cushies (9)
https://www.facebook.com/groups/198091784103427/

Delaware Cushies (1)
https://www.facebook.com/groups/702589536611084/

Florida Cushies (102)
https://www.facebook.com/groups/337022150037978/

Georgia Cushies (9)
https://www.facebook.com/groups/874743196043631/

Hawaii Cushies (1)
https://www.facebook.com/groups/160653324587379/

Idaho Cushies (6)
https://www.facebook.com/groups/346697402499207/

Illinois Cushies (27)
https://www.facebook.com/groups/909629492537725/

Indiana Cushies (20)
https://www.facebook.com/groups/190293658390649/

Iowa Cushies (3)
https://www.facebook.com/groups/384233908709267/

Kansas Cushies (7)
https://www.facebook.com/groups/328949854266173/

Kentucky Cushies (7)
https://www.facebook.com/groups/176415352972314/

Louisiana Cushies (10)
https://www.facebook.com/groups/1982205115431929/

Maine Cushies (5)
https://www.facebook.com/groups/1940679902851939/

Maryland Cushies (25)
https://www.facebook.com/groups/158043194901155/

Massachusetts Cushies (15)
https://www.facebook.com/groups/377364986063601/

Michigan Cushies (31)
https://www.facebook.com/groups/2021340054858083/

Minnesota Cushies (15)
https://www.facebook.com/groups/1585767671513899/

Mississippi Cushies (8)
https://www.facebook.com/groups/2117766678502823/

Missouri Cushies (37)
https://www.facebook.com/groups/410307742716607/

Montana Cushies (4)
https://www.facebook.com/groups/1202154536584581/

Nebraska Cushies (4)
https://www.facebook.com/groups/360516677748199/

Nevada Cushies (4)
https://www.facebook.com/groups/1072271246248490/

New Hampshire Cushies (2)
https://www.facebook.com/groups/742220795973468/

New Jersey Cushing's Patients (58)
https://www.facebook.com/groups/188241875101760/

New Mexico Cushies (6)
https://www.facebook.com/groups/178007046146315/

New York Cushies (52)
https://www.facebook.com/groups/587077268306700/

North Carolina Cushies (29)
https://www.facebook.com/groups/1710343392355471/

North Dakota Cushies (1)
https://www.facebook.com/groups/207187900021808/

Ohio Cushies (34)
https://www.facebook.com/groups/2008945272680761/

Oklahoma Cushies (26)
https://www.facebook.com/groups/2013599672239343/

Oregon Cushies (10)
https://www.facebook.com/groups/187605472002162/

Pennsylvania Cushies (74)
https://www.facebook.com/groups/1579150108864894/

Rhode island Cushies (5)
https://www.facebook.com/groups/189736091775237/

South Carolina Cushies (22)
https://www.facebook.com/groups/249162592290144

South Dakota Cushies (22)
https://www.facebook.com/groups/2020373744917685/

Tennessee Cushies (27)
https://www.facebook.com/groups/165324084247958/

Texas Cushies (120)
https://www.facebook.com/groups/161452327813664/

* DFW Cushies (71)
https://www.facebook.com/groups/1274394622665594/

* Central Texas Cushies (11)
https://www.facebook.com/groups/324469071384027/

* Houston (64)
https://www.facebook.com/groups/201775113697744/

Utah Cushies (15)
https://www.facebook.com/groups/1970133526531675/

Vermont Cushies (9)
https://www.facebook.com/groups/150026969133961/

Virginia Cushies (27)
https://www.facebook.com/groups/164594464166392/

Washington cushies (19)
https://www.facebook.com/groups/1210175792419437/

West Virginia Cushies (6)
https://www.facebook.com/groups/1725357887522123/

Wisconsin Cushies (29)
https://www.facebook.com/groups/183608012244646/

Wyoming Cushies (1)
https://www.facebook.com/groups/547530572274806/

** INTERNATIONAL CUSHING'S GROUPS (members as of post)**

Cushings - Australia (190)
https://www.facebook.com/groups/1689486061297726/

Cushing's Disease Awareness - Canada (105)
https://www.facebook.com/groups/cushingscanada/

Europe Cushies (1) -- NEW
https://www.facebook.com/groups/801460396916637/

Indian Cushies (9)
https://www.facebook.com/groups/653404548443766/

Cushing's UK (783)
https://www.facebook.com/groups/220700984995893/

New Zealand Cushies (1) -- NEW
https://www.facebook.com/groups/3134700249904171/

South Africa Cushies (1) -- NEW
https://www.facebook.com/groups/727192837714506/

** DOCTOR LISTS (members as of post)**
Cushing's Support and Research Foundation
https://csrf.net/resources/cushings-doctors/

Cushing's Help - SCROLL DOWN
http://www.cushings-help.com/doctors.htm

The EPIC Foundation
https://www.epictogether.org/cushings-experts/