Thursday, February 13, 2020

Get Connected: Facebook groups

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Fighting Cushing's with moxie is difficult. We have to surround ourselves with people who know what it's like and how to help us. ...
Thursday, September 5, 2019

Brain holds A.M. meeting

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I wanted to share a cute video from Juggling the Jenkins about what would happen if our brain held a morning meeting to prepare us for the d...

Twelve year old with Cushing’s

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Twelve year old Juliana says moving to Alabama saved her life, as doctors finally diagnosed her with Cushing's after five years of sympt...
Monday, May 13, 2019

How Good is Your Safety Net: Join your Local Cushie Group

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Having Cushing's often feels like we are free-falling. Join your local Cushing's group and grab an arm or leg. Hang on forever. ...
Saturday, April 27, 2019

Stanford research develops cortisol meter for sweat

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Such an invention would simplify testing, diagnosis, and post op care for Cushing's patients. What a world it would be if there was no m...
Friday, January 4, 2019

Fludrocortisone shortage

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Today I share with you the January 4, 2019 notice from National Adrenal Disease Foundation. It provided an update for the ongoing fludrocort...
Thursday, January 3, 2019

Getting your Cortisol Dosage Right

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Doctors generally scare patients from taking extra cortisol (ie updosing or stress dosing) after pit surgery, adrenal surgery, or removing b...
Sunday, December 2, 2018

Patient Portals

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Back in my day, when I was first testing for Cushing's in 2007, there were no online patient portals. It would take two to three weeks f...
Tuesday, October 23, 2018

Insurance Inspection: It's Open Enrollment Time

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Today, I share with you some wise words from a post op Cushie and patient advocate, Susan G. She moderates the Facebook group, The Many Fac...
Friday, July 13, 2018

Guilt. Pain. Depression.

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I sit on my back porch staring at the flower across the yard. I hear the birds sing in the distance. I hear my service dog's nails h...
Monday, July 9, 2018

Cleaning while Cushie

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Cushing's causes depression. Not over the way we look but by the chemical hormones our pituitary puts or doesn't put out. Excess c...
Wednesday, July 4, 2018

Cushing’s from Steroids

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Think back to all your doctors appointments: How many times were you offered steroids for treatment? Steroids are passed out like candy in m...
Thursday, June 21, 2018

Initial Cushing’s Work Up

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Many tests must be run to rule out the diagnosis of Cushing's, yet we hear from many who suspect Cushing's that their primary car...
Thursday, May 24, 2018

Elusive Remission: More Pituitary Treatments or BLA

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Today, someone on the message boards asked about removing both adrenal glands. This surgery is called bilateral adrenalectomy (BLA)...