Saturday, April 27, 2019

Stanford research develops cortisol meter for sweat

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Such an invention would simplify testing, diagnosis, and post op care for Cushing's patients. What a world it would be if there was no m...
Friday, January 4, 2019

Fludrocortisone shortage

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Today I share with you the January 4, 2019 notice from National Adrenal Disease Foundation. It provided an update for the ongoing fludrocort...
Thursday, January 3, 2019

Getting your Cortisol Dosage Right

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Doctors generally scare patients from taking extra cortisol (ie updosing or stress dosing) after pit surgery, adrenal surgery, or removing b...
Sunday, December 2, 2018

Patient Portals

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Back in my day, when I was first testing for Cushing's in 2007, there were no online patient portals. It would take two to three weeks f...
Tuesday, October 23, 2018

Insurance Inspection: It's Open Enrollment Time

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Today, I share with you some wise words from a post op Cushie and patient advocate, Susan G. She moderates the Facebook group, The Many Fac...
Friday, July 13, 2018

Guilt. Pain. Depression.

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I sit on my back porch staring at the flower across the yard. I hear the birds sing in the distance. I hear my service dog's nails h...
Monday, July 9, 2018

Cleaning while Cushie

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Cushing's causes depression. Not over the way we look but by the chemical hormones our pituitary puts or doesn't put out. Excess c...
Wednesday, July 4, 2018

Cushing’s from Steroids

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Think back to all your doctors appointments: How many times were you offered steroids for treatment? Steroids are passed out like candy in m...
Thursday, June 21, 2018

Initial Cushing’s Work Up

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Many tests must be run to rule out the diagnosis of Cushing's, yet we hear from many who suspect Cushing's that their primary car...
Thursday, May 24, 2018

Elusive Remission: More Pituitary Treatments or BLA

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Today, someone on the message boards asked about removing both adrenal glands. This surgery is called bilateral adrenalectomy (BLA)...
Friday, May 11, 2018

Comprehensive List of Cushing's Symptoms collected by a Cushie

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I've spent the last 11 years of my life surviving Cushing's and its aftermath by immersing myself in the patient community online. ...