Monday, January 8, 2018

NADF’s Emergency Protocols

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A big thanks to my friend Karen, founder of the EPIC Foundation for for sharing the National Adrenal Support Foundation. This resource has m...
Thursday, November 9, 2017

Finally!! Salivary cortisol meter on smart phone!!

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Tuesday, November 7, 2017

Join me! Be an Advocacy Troll

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Fed up with endocrine info, I've been posting on the Facebook pages of EndocrineWeb and the American Association for Clinical E...

It's about time there was support for Cushing's!

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I encourage you to create an account and read, Read, READ on Cushings-help.com. It's free! As you may have heard me say before, I...
Wednesday, October 25, 2017

Adrenal Crisis & BLA

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Take a listen to JenS  as she describes her Cushing's journey and adrenal crisis. *Thank you to MaryO, founder of www.cushings-hel...
Saturday, October 21, 2017

Addison’s Mum, 44, died after antibiotics don’t control UTI

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Sarah Ann Parr, 44, wife and mum of two felt faint and dizzy after a family walk. She had taken antibiotics for a urinary tract infection (U...

The Matchstick Theory

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Like many Cushies and folks who struggle with chronic disease daily, I've heard of the spoon theory. Some people love it and go ga ga fo...
Friday, October 13, 2017

Cushing’s is Mysterious

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Saturday, September 30, 2017

Google Cushing’s Moxie

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I have written over 350 posts about Cushing's in the past nine years. Even I have forgotten all I had to say about Cushing's—high co...
Tuesday, September 26, 2017

Cushing's - Forget You!

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In talking with other Cushies this week, it seems like so many of us are feeling down. I started humming this song tha...
Sunday, September 17, 2017

Cortisol Replacement after Surgery

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I read lots of stories online about patients preparing for surgery and surviving post op. We hear that weaning off cortisol post op after ha...
Wednesday, September 13, 2017

Limitations

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Saturday, September 9, 2017

Patient Advocacy

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Friday, September 8, 2017

My Plea to Cushies

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My Plea to Cushies & Those Who Love them Please research patient advocacy. Please learn what it means to stand up for yourself or lov...
Wednesday, September 6, 2017

Houston woman, post op Cushie dies during Hurricane Harvey

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Wife, Mother of 2, post op Cushing's patient dies without medical care during Hurricane Harvey's flooding Photos featured...
Thursday, August 17, 2017

Detailed SOLU-CORTEF actovial instructions with Photos

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Detailed SOLU-CORTEF actovial instructions with Photos. These are the best and most thorough that I've ever seen.  Add this to your emer...
Tuesday, August 15, 2017

Choosing a BLA surgeon

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(Updated September 5, 2018) How do you choose a BLA surgeon? What do you need them to say that will prove to you that will get every last ...
Sunday, August 13, 2017

Cushing's is as bad as Cancer

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As Cushies, we often struggle to let others know how poorly we are doing. How can they possibly understand when they don't know with ...
Wednesday, August 2, 2017

Growth hormone for $0 a month!!

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I found out recently that Humatrope does not charge a copay for people who don't have the money for it!! I now pay $0 per month!! I us...
Tuesday, July 18, 2017

Looking back at the path you chose

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In case you haven't noticed, helping other Cushing's patients wade through the cortisol quagmire is kinda a big deal ...
Friday, July 7, 2017

Are Patients Screened for Cushing's before Gastric Bypass?

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Do doctors screen obese people before gastric bypass for Cushing's? I doubt you are surprised that docs don't. Our friend Robin expl...
Thursday, July 6, 2017

Could Actress Lauren Ash have Cushing's?!

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Tonight I switched over to Hollywood Game Night after watching American Ninja Warrior with the family. My eyes were immediately drawn to an...
Saturday, July 1, 2017

Addison's and Surgery

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Woo hoo! "The ADSHG surgical guidelines have been given a makeover!  The new-look guidelines are available on the website, with print c...