Saturday, September 30, 2017

Google Cushing’s Moxie

›
I have written over 350 posts about Cushing's in the past nine years. Even I have forgotten all I had to say about Cushing's—high co...
Tuesday, September 26, 2017

Cushing's - Forget You!

›
In talking with other Cushies this week, it seems like so many of us are feeling down. I started humming this song tha...
Sunday, September 17, 2017

Cortisol Replacement after Surgery

›
I read lots of stories online about patients preparing for surgery and surviving post op. We hear that weaning off cortisol post op after ha...
Wednesday, September 13, 2017

Limitations

›
Saturday, September 9, 2017

Patient Advocacy

›
Friday, September 8, 2017

My Plea to Cushies

›
My Plea to Cushies & Those Who Love them Please research patient advocacy. Please learn what it means to stand up for yourself or lov...
Wednesday, September 6, 2017

Houston woman, post op Cushie dies during Hurricane Harvey

›
Wife, Mother of 2, post op Cushing's patient dies without medical care during Hurricane Harvey's flooding Photos featured...
Thursday, August 17, 2017

Detailed SOLU-CORTEF actovial instructions with Photos

›
Detailed SOLU-CORTEF actovial instructions with Photos. These are the best and most thorough that I've ever seen.  Add this to your emer...
Tuesday, August 15, 2017

Choosing a BLA surgeon

›
(Updated September 5, 2018) How do you choose a BLA surgeon? What do you need them to say that will prove to you that will get every last ...
Sunday, August 13, 2017

Cushing's is as bad as Cancer

›
As Cushies, we often struggle to let others know how poorly we are doing. How can they possibly understand when they don't know with ...
Wednesday, August 2, 2017

Growth hormone for $0 a month!!

›
I found out recently that Humatrope does not charge a copay for people who don't have the money for it!! I now pay $0 per month!! I us...
Tuesday, July 18, 2017

Looking back at the path you chose

›
In case you haven't noticed, helping other Cushing's patients wade through the cortisol quagmire is kinda a big deal ...
Friday, July 7, 2017

Are Patients Screened for Cushing's before Gastric Bypass?

›
Do doctors screen obese people before gastric bypass for Cushing's? I doubt you are surprised that docs don't. Our friend Robin expl...
Thursday, July 6, 2017

Could Actress Lauren Ash have Cushing's?!

›
Tonight I switched over to Hollywood Game Night after watching American Ninja Warrior with the family. My eyes were immediately drawn to an...
Saturday, July 1, 2017

Addison's and Surgery

›
Woo hoo! "The ADSHG surgical guidelines have been given a makeover!  The new-look guidelines are available on the website, with print c...
Wednesday, June 28, 2017

In Memorium: Cushies We Lost

›
MaryO, founder of Cushing's Help online does the solemn job of maintaining the In Memorium list of Cushies we lost (among her many jobs)...

Your Part in Cushing's Awareness

›
In response to my previous post about Kalyn's death, someone in a Cushing's group said she didn't know Cushing's led to deat...

Rest In Peace, Kalyn

›
We lost another Cushie sister today, Kalyn Allen. Her husband posted these updates:  Yesterday he posted: Kalyn is in critical condition in ...
Saturday, June 3, 2017

Recommending my Dallas Endocrinologist

›
I've been thinking about all the people in Texas who are still looking for a good endo. I highly recommend my current endo, Sasan Mirfah...
Tuesday, May 30, 2017

Chronic Opioid Use caused Secondary Adrenal Insufficiency

›
Cushies often feel pain all over our bodies. Doctors ask where we hurt, and we say 'everywhere.' We hope surgery cures us of a...
Tuesday, April 11, 2017

Day 5: Cushie Stories -- share your before and after photos

›
When I first started my blog in June 2009, I went through the painful process of posting photos that showed how Cushing's and high corti...

Day 4: 'Ugly disease' left Scottish woman with a round face and buffalo hump

›
Cushing's Awareness Month, day 4. Syndrome nicknamed 'ugly disease' left Scottish woman with a round face and a 'buff...