Tuesday, August 15, 2017

Choosing a BLA surgeon

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(Updated September 5, 2018) How do you choose a BLA surgeon? What do you need them to say that will prove to you that will get every last ...
Sunday, August 13, 2017

Cushing's is as bad as Cancer

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As Cushies, we often struggle to let others know how poorly we are doing. How can they possibly understand when they don't know with ...
Wednesday, August 2, 2017

Growth hormone for $0 a month!!

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I found out recently that Humatrope does not charge a copay for people who don't have the money for it!! I now pay $0 per month!! I us...
Tuesday, July 18, 2017

Looking back at the path you chose

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In case you haven't noticed, helping other Cushing's patients wade through the cortisol quagmire is kinda a big deal ...
Friday, July 7, 2017

Are Patients Screened for Cushing's before Gastric Bypass?

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Do doctors screen obese people before gastric bypass for Cushing's? I doubt you are surprised that docs don't. Our friend Robin expl...
Thursday, July 6, 2017

Could Actress Lauren Ash have Cushing's?!

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Tonight I switched over to Hollywood Game Night after watching American Ninja Warrior with the family. My eyes were immediately drawn to an...
Saturday, July 1, 2017

Addison's and Surgery

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Woo hoo! "The ADSHG surgical guidelines have been given a makeover!  The new-look guidelines are available on the website, with print c...
Wednesday, June 28, 2017

In Memorium: Cushies We Lost

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MaryO, founder of Cushing's Help online does the solemn job of maintaining the In Memorium list of Cushies we lost (among her many jobs)...

Your Part in Cushing's Awareness

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In response to my previous post about Kalyn's death, someone in a Cushing's group said she didn't know Cushing's led to deat...

Rest In Peace, Kalyn

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We lost another Cushie sister today, Kalyn Allen. Her husband posted these updates:  Yesterday he posted: Kalyn is in critical condition in ...
Saturday, June 3, 2017

Recommending my Dallas Endocrinologist

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I've been thinking about all the people in Texas who are still looking for a good endo. I highly recommend my current endo, Sasan Mirfah...
Tuesday, May 30, 2017

Chronic Opioid Use caused Secondary Adrenal Insufficiency

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Cushies often feel pain all over our bodies. Doctors ask where we hurt, and we say 'everywhere.' We hope surgery cures us of a...
Tuesday, April 11, 2017

Day 5: Cushie Stories -- share your before and after photos

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When I first started my blog in June 2009, I went through the painful process of posting photos that showed how Cushing's and high corti...

Day 4: 'Ugly disease' left Scottish woman with a round face and buffalo hump

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Cushing's Awareness Month, day 4. Syndrome nicknamed 'ugly disease' left Scottish woman with a round face and a 'buff...

Day 3: Happy Birthday to the Steroid Chemist, Percy Lavon Julian

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Have you heard of Percy Lavon Julian and his contributions to the Cushing's and Addison's community? "The grandson of ...

Day 2: Good News + How Many Doctors does a Cushie require?!

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Hello all.  I'm on Day 2 of the Cushing's Awareness Challenge for Bloggers.  As you can see, it is now April 11th. I believe I state...
Sunday, April 2, 2017

Day 1: Blogging with the Cushies, featuring Alicia and The EPIC Foundation

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Have you checked out The Epic Foundation? I encourage you to do so. Cushie comrade Karen has dreamed of starting this non-profit to help Cus...

Day 1: Blogging with the Cushies, featuring MaryO

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MaryO kicks off Cushing's Awareness Month with a blog post about a testing method that had been discussed for years but many of us haven...

Day 1: BIG news month. Don't miss it.

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Hey hey, what do you say? Cushing's Awareness Month starts today.  H O O R A Y ! Am I cutting it close or what?  11:55 pm  on ...