Thursday, April 7, 2016

Cushing's Awareness Month: What You Have vs. What Doctors will Say You Have

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What Doctors Will Claim You Have Instead of Cushing's, because Cushing's is too rare Obesity (lose weight, lose symptoms) Po...
Wednesday, April 6, 2016

It's Cushing's and Adrenal Insufficiency Awareness Month!

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Day 1: It's Cushing's and Adrenal Insufficiency Awareness Month 772,998 page views. WOW! 2016 not 2015. Mistake from a Cushie ...
Thursday, February 18, 2016

Wow! Updates to Addison's Owners Manual

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Hi friends! I'm still alive and kicking! I have so much exciting news to share with you, and I must share things one at a...
Wednesday, November 11, 2015

Life as a Cushie

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You know you are a Cushie when you turn off the car engine at the pharmacy drive thru because filling 12 prescriptions for a 90 day supply f...
Friday, September 4, 2015

PNA: Cushing's at 16

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Copyright Robin and Pituitary Network Association, 2015. I am thankful to read a Cushing's article in the latest Pituitary Network ...

Feel like talking and typing

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It's been a long time since I felt up to updating. It's been on my mind lately, so I decided to pop in and say hi. I hope to find th...
Thursday, April 2, 2015

Day 1: Cushing's Awareness Month Bloggers Challenge

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Cushing's Awareness Month: Bloggers Challenge Day 1 Here we are again on April 1st. I join my fellow Cushies in blogging for t...
Sunday, March 15, 2015

After gaining 120 pounds in 1 year, rare diagnosis saves man's life

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Cushing's was featured this morning on the Today Show's Medical Mysteries three-part series.  Hooray for national exposure for ...
Monday, March 2, 2015

17 Things You'll Only Understand If You Have A Rare Disease

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Hi. It is been a long time since I posted something. The road to recovery after years of battling Cushing's disease can be long and curv...
Sunday, January 25, 2015

Bilateral adrenalectomy for Cushing's disease

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I would love to see the whole article because the abstract seems pretty basic.  However, the news is good. Bilateral adrenalectomy or BLA i...
Friday, January 23, 2015

Seeing is Believing

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7T MRI machines! A patient said the Cleveland Clinic got one in 2013. Wonder where else? These stronger magnet machines have existed for re...
Tuesday, December 23, 2014

High rates of adrenal crisis seen in patients with chronic insufficiency

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Who ends up going through adrenal crises? Can emotional stress trigger a crisis? Doctors insist it is not possible and advise us to rarely ...

NJ Gets Solu-Cortef on Ambulances

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From the News Items and Research section of MaryO's Cushing's Help site: The New Jersey Department of Health passed a waiver in Octo...

Tumors: malignant v. benign

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Both types of tumors should be feared and their patients revered.
Tuesday, December 2, 2014

My Story with Truth and Honesty

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I love family and I enjoy genealogy. Recently, I found a cousin Dorotea in another country on Facebook. Seeing a post, she asked, are u si...
Monday, October 27, 2014

Advice for Cort-Reduction Surgery

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I just made up that name. Cort reduction surgery sounds like the new wave of self help surgeries, doesn't it? Well, as each day goes ...
Saturday, October 18, 2014

Straight Talk Cushing's

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It's good to have choices. Now there are two FDA-approved drugs available for those Cushies who are not a candidate for a/another surg...
Sunday, October 12, 2014

Quick, Easy, Inexpensive Cortisol Testing Should Soon Be Available on All Smartphones

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June 2014 Quick, Easy, Inexpensive Cortisol Testing Should Soon Be Available on All Smartphones Contact: Aaron Lohr Director, Media Relation...

Handheld Cortisol Sensor for PTSD via iStart.org

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Let's reward the businesses out there working to make a cortisol meter! ------------------ Abstract Our cortisol sensing technology enab...

Researchers developing a test for real-time stress detection

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Ask me! I'll participate. I have over 100 friends who have no adrenal glands. Let us test the device with you.  - Signed, a Cushing'...

Electrochemical sensing of cortisol

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Electrochemical sensing of cortisol: a recent update. Authors Singh  A, Kaushik A, Kumar R, Nair M, Bhansali S. Journal Appl Biochem Biotech...

Continuous subcutaneous hydrocortisone infusion viable option to normalize cortisol

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" Continuous subcutaneous hydrocortisone infusion viable option to normalize cortisol Øksnes M.  J Clin Endocrinol Metab . 2014;doi:10....