Thursday, July 3, 2014

My Quest by Care360

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Back in 2011, I bragged about how  Quest Diagnostics gives patients their test results through their app . I happily study each report to un...
Tuesday, July 1, 2014

** Measure cortisol on a smartphone **

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The Cushing's community has bemoaned the absence of any cortisol-measuring device for the patient's use. Now after my bilateral adre...
Sunday, June 29, 2014

Facial Recognition: Hope for Cushies?

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Because Cushies can have very specific body changes, such as moon facies, red cheeks, supraclavicular pads, this type of disease database ca...
Saturday, May 17, 2014

Do you have an emergency shot?

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It is of the utmost importance that people with primary adrenal insufficiency [bilateral adrenalectomy(BLAers) and secondary adrenal ...
Friday, April 25, 2014

Cushing's Awareness Month: A Pain to Treat

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ASSIGNMENT 13: The 'pain' of feeling caught in the middle Fellow Cushie Vanessa is featured in the article below about patients with...
Monday, April 21, 2014

Cushing's Awareness Month: It's Not our Fault

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Our planet Earth is comprised of billions of people of different faiths, cultures, and customs. Some are so different that people go to war....

Cushing's Awareness Month: Why Doctors Don't Know

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Many patients spend hours in bed struggling with life and wondering why doctors don't do more to help us. Why would he think I'm lyi...
Sunday, April 20, 2014

Cushing's Awareness Month: How do I partner with my doctor

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How do you ensure that you are telling your doc everything you can, all information is accounted before the appointment arrives? 5 Things to...
Saturday, April 19, 2014

Cushing's Awareness Month: Notes from a Neurosurgeon

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Dr. McCutcheon is a wonderful neurosurgeon. He performed my second pituitary surgery.  Dr. McCutcheon has helped many Cushing's patients...
Friday, April 18, 2014

Cushing's Awareness Month: When the "gold standard" becomes tarnished

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Board-certified endocrinologists do not know how to diagnose Cushing's. Robin, blogger at http://survivethejourney.blogspot.com , wr...

Cushing's Awareness Month: Diagnosis is not as easy as it seems

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My Cushing's specialist, Dr. Friedman presented this slide show five years ago.  Diagnosing Cushing's Syndrome:  Not as Easy as it S...

Cushing's Awareness Month: Pituitary & Adrenal Glands

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I found these very realistic images of the pituitary and adrenal glands from from  TheVisualMD.com , and I just had to share. Images 1-4 sho...
Thursday, April 17, 2014

Cushing's Awareness Month: Cushies Care

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When Cushies don't know where to run, we run to each other.
Wednesday, April 16, 2014

Cushing's Awareness Month: My Life is a Delicate Balance

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Female Patient found Unconscious with Syringe Nearby Paramedic's misdiagnosis of drug overdose could have cost patient her life,...

Cushing's Awareness Month: Thanks but No Thanks

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Cushies find that everyone offers unhelpful advice instead of learning about our disease. Frankly, we don't need that kind of help! We ...

Cushing's Awareness Month: Endos in Short Supply

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http://www.healio.com/endocrinology/diabetes/news/print/endocrine-today/%7B511d7427-678b-42e0-9b7b-4e374fabc62a%7D/us-endocrinologist-shorta...
Friday, April 11, 2014

Cushing's Awareness Month: Degree of Difficulty

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I enjoy a good obstacle course game show. As a child, I fell in love watching Battle of the Network Stars. I DVRed Wipeout and giggle throu...
Wednesday, April 2, 2014

Cushing's Awareness Day 2: Depression Cloud Follows Cushies

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Cushing's patients face mental as well as physical changes from excess cortisol and pituitary/ adrenal tumors, making it excruciatingly...
Tuesday, April 1, 2014

Post #1: Chronic Pain and Incertainty

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Cushies are tormented as we struggle with the medical community and face our own bodies and changing identities every day.  It just should...

Cushing's Awareness Month

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Here we are again! April is here. One of my favorite times of the year. Although many celebrate one day of Cushing's awareness cen...
Monday, March 31, 2014

Actors faking ailments to help doctors improve

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Can we get some Cushing's patients in the mix? These doctors need practice listening to our stories. How ca I get a job doing this f...
Thursday, March 27, 2014

Cortisol Clock?

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If my adrenal glands really looked like clock parts, I know why they had to come out! http://www.thevisualmd.com/panel/?c=07.3
Monday, March 24, 2014

Patience

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This is the hardest thing to deal with, isn't it? Not just with chronic illness or Cushing's, with every day life, right? People...

Not a Weight Loss Story

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I pulled my neck on Saturday. I was very sore. My muscles were so tight couldn't turn my neck from side to side. I was so happy when I ...
Wednesday, March 19, 2014

Adrenal Crisis Pathway

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I printed very detailed flow chart of the adrenal crisis pathway and and placed it in my crisis kit. http://www.cahisus.co.uk/pdf/Adren...
Friday, March 14, 2014

Elusive, Sweet Sleep

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Thursday, March 13, 2014

Cushing's overview

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This article from the Pituitary Society is a very informative review of symptoms, diagnosis, surgery and other treatment, and reoccurrence. ...
Tuesday, March 11, 2014

Cushing Syndrome: Maybe Not So Uncommon of an Endocrine Disease

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http://jabfm.org/content/25/2/199.full I heard Dr Salvatori at the Johns Hopkins School of Medicine at the Magic conference in July 2012...
Saturday, March 8, 2014

A Cushie after BLA

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Gave Cushing's the Hand

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Tuesday, February 25, 2014

Must Watch Song!

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Turn up the speakers and enjoy my friend Stephanie tell off Cushing's... in tune! Forget You! http://www.youtube.com/watch?v=oTmJCzZHD58...
Sunday, February 23, 2014

What is THE WORST DISEASE YOU CAN HAVE?

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My blog got Cushing's listed as the 18th site listed, among this terrible list of ailments. At least it's on the radar :) http://...

Radiation vs BLA

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Many questions circle around a Cushie's head before undergoing a bilateral adrenalectomy (BLA). Many doctors convince the patient that B...
Saturday, February 22, 2014

Shop.AIunited.org

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Fantastic!  Adrenal Insufficiency United has its new shop up and running.  Get yourself an emergency kit and other goodies. http://shop....

Guest Blogger Blogger: Laura C.

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My new friend Laura shared her battle with Cushing's. We all applaud her bravery and honesty. #lauraisscool --im having trouble pasting ...