Sunday, January 12, 2014

Pills to Live

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My mama brought my meds to me in bed. After I took my 5 mg HC and 0.05 Florinef, I proudly announced, "Good. That'll keep me alive ...
Saturday, January 11, 2014

CUSHDAR

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Cushdar is a word I made up 10 mins ago. Similar to radar and sonar, it's the keen sixth sense Cushies develop about their bodies and co...

In Search of the Perfect Siesta

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Image courtesy of The Guardian. I'm post op BLA day 11 and made it through day three at dose 25/5 (hydrocortisone 25 mg at 8 am, 5 mg at...
Friday, January 10, 2014

Cushing's Support & Research Foundation

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Cushing's Patient Education Day, 2014 The CSRF is holding a Cushing's Patient Education Day in Atlanta, GA,  February 28 - March 1, ...
Wednesday, January 8, 2014

Good news 7 days post op BLA

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I wanted a quantitative way to track my progress post BLA.  My mother, a fantastic seamstress, took my measurements in 12 different places...
Tuesday, January 7, 2014

Dr Friedman's Adrenal Gland Chapter

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Guess who wrote the adrenal chapter of this very well-known and recognized medical textbook? Our very own Dr. Theodore Friedman! "Stude...
Monday, January 6, 2014

Patient vs. The Labs: Are You Ready?

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> My friend Robin gives a wonderful explanation of the tests used to diagnose Cushing's and then ways the labs can ruin the hard work...
Sunday, January 5, 2014

Bye Bye Adrenals, Hello New Friends

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Adrenal glands, red in this image, are buried under all that human organ stuff in the abdomen. I used to see BLAers, a term of endearment fo...

Update

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I was discharged on Friday on a dose of 45 mg hydrocortisone at 8 am and 15 mg hydrocortisone at 3 pm, plus Florinef 0.05 mg twice a day. ...
Wednesday, January 1, 2014

Happy New Year

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Tuesday, December 31, 2013

Update

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2:21 pm pst - surgeon just visited. He and I are ready to go. He will grab a sandwich. I told him "No turkey!" I asked him to gi...

Teaching Moments

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I'm chatting with my nurse, Olga from Moscow. She is very interested in all I was telling her about Cushing's. She's gonna check...

BLA on the way

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Surgery won't be for a while. 2nd patient just went back. They let me come back to the pre-op room to lie down and get comfortable. It...

New Best Friend

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I know I will make it through with my new best friend / favorite three words for this week: ~ patient-controlled dilaudid ~

Surgery Selfie

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Waiting Room with a View

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Let's Get This Party Started

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My surgery is scheduled for 1:00 pm on 12/31/2013.  Call time is 10:30 am.  I am the third surgery of the day.  I am tired to...
Sunday, December 29, 2013

Goodbye Cushing's: Finally, I get my BLA

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I am finally approved for my BLA in Los Angeles, CA for December 31, 2013.  It's our wedding anniversary, so my husband said he would ta...
Tuesday, December 17, 2013

Patient Information for Laparoscopic Adrenal Gland Removal (Adrenalectomy) from SAGES

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I thought this was a good read. It includes things to do pre-op that I haven't seen written down. Most of these, though, don't alway...
Sunday, December 8, 2013

Inflammation: Why You STILL Have Low Thyroid Symptoms

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I can truly appreciate this video of a doctor explaining how a patient with hypothyroid symptoms show normal lab results, stump doctors, and...
Friday, December 6, 2013

Life Lines: My Cushie Friends

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In life's game of Who Wants to be a Healthy Patient, my phone-a-friend lifeline will be a Cushie friend over any endocrinologist, any da...

We *are* so brave

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From our friends over at www.Butyoudontlooksick.com .
Thursday, December 5, 2013

Cushing's, Cortisol and Receptors

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More research from the Dutch and Germans. I have no idea what this means! My Cushie brain can not piece together this new information.  I ha...

Support your Loved One with Chronic Pain

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Pete Beisner knows a lot about supporting a partner in chronic pain. Here, he shares insights on how to take care of the person you lo...

Solu-Cortef on the Ambulances

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Print this flyer and give to your EMS team http://www.caresfoundation.org/productcart/pc/EMS/Flyer.pdf

Non-Green States => Preventable Deaths

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Solu-Cortef Emergency Medical Response CARES Foundation is another non-profit organization that is working to educate EMS professio...

Hey EMS Professionals: Study Up

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Kudos to  the  Massachusetts Department of Public Health for developing and sharing this presentation . "This presentation is intend...
Wednesday, December 4, 2013

RIP Sarah: Another Senseless Cushie Death

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Sarah Thomas, 30, died six hours after EMS refused to take her to the hospital or administer her the life-saving Solu-Cortef injecti...

Management of Adrenal Insufficiency

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You know how I feel like that Europe is publishing so much research about Cushing's and adrenal insufficiency. Here's an article po...
Monday, December 2, 2013

READY FOR BLA: keychain case

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My bilateral adrenalectomy is scheduled for Tuesday, December 17th. These pesky adrenals come out in two weeks. I look forward to the da...
Friday, November 29, 2013

Lori's Brainiversary

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Lori is my good friend who underwent pituitary surgeries 4 and 5 last September 2012. She is doing very well. Check out her video and see...

cushingsmoxie sent you a video: "CushieSteph Intro"

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cushingsmoxie sent you a video: "Cushing's Disease & Acromegaly (brief story of my journey)"

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cushingsmoxie sent you a video: "Renée - Cushing's After a Failed Surgery"

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cushingsmoxie sent you a video: "Melissa - Cushing's Symptoms & Diagnosis"

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cushingsmoxie sent you a video: "Phillip - Living with Cushing's Syndrome"

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What We Know Just Changed: "Adrenal glands produce ACTH"

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NOTE:  I wrote this blog entry after taking my sleeping pill for the night. I'll reread this in a few days and catch any errors. Rig...