Tuesday, November 12, 2013

Spreading the sweet word: Family alerting first responders to rare disease

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Adrenal Insufficiency United is a non-profit organization that is bridging the knowledge gap between first responders and the adrenal-insuff...
Saturday, November 9, 2013

Adrenal Crisis Pathway

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You can download the image for your use here: https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7dnL5aBM_gjy3foydS1YbO30DiFvXFOinT...
Friday, November 8, 2013

The Awful Truth

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Adrenalectomy through the Nurse's Eye

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  Perioperative care of the laparoscopic adrenalectomy patient  OR Nurse 2013 ,   November 2010 Expires: 12/31/2013 | Perioperative care of ...

Beyond pituitary surgery: Radiosurgery vs. Adrenalectomy vs Medical Treatment when Cushing’s disease persists or recurs

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I found this presentation today. It's for people like me who suffer from refractory Cushing's and want to understand all the option...
Thursday, November 7, 2013

My health is a big part of my life

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BOOM - more high cortisol results

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One day of four received. Test results from 10/31/2013 15.4  HIGH  diagnostic midnight cortisol serum (n<5, diagnostic >7.5) 0.37 HIGH...
Wednesday, November 6, 2013

Adrenal Surgery Treatment & Management

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I have read a lot about bilateral adrenalectomy in general terms. Now, it is time that I know the specifics. This articles goes into more d...

Keto: It was fun while it lasted

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I started Ketoconazole in August 2012 after having high midnight salivary cortisol, high midnight serum cortisol, and high urine 17-hydroxy-...
Tuesday, November 5, 2013

Pituitary Disorders and the Family

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      PNA Webinar Announcement                   Webinar: Pit...
Monday, November 4, 2013

New Chapter of my Life

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Hey everyone! I've missed you all. It's not that I haven't. I just haven't even able to keep up on posting like I wish ...
Saturday, November 2, 2013

BLA takes a Patient from Cushing's to Addison's

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Adrenal crisis in treated Addison's disease: a predictable but under-managed event Katherine White  and Wiebke Arlt 1 Addison's Dise...

Patient Access to Current Medical Literature

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File this one under Learn Something New Every Day.  To me, this is a BIG SOMETHING. Doing research? Do you want to read a recent article?  T...
Monday, October 28, 2013

Reading your Rx

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I'm in the midst of updating my massive medication list, as I am going to see my Cushing's specialist today.  It occurred to me that...
Thursday, October 10, 2013

SIGN THE PETITION: We deserve better than Solu Cortef

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Cushies deserve a better emergency injectable device than the one option we have in Pfizer's Solu Cortef. This medication is used during...