Thursday, November 7, 2013

My health is a big part of my life

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BOOM - more high cortisol results

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One day of four received. Test results from 10/31/2013 15.4  HIGH  diagnostic midnight cortisol serum (n<5, diagnostic >7.5) 0.37 HIGH...
Wednesday, November 6, 2013

Adrenal Surgery Treatment & Management

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I have read a lot about bilateral adrenalectomy in general terms. Now, it is time that I know the specifics. This articles goes into more d...

Keto: It was fun while it lasted

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I started Ketoconazole in August 2012 after having high midnight salivary cortisol, high midnight serum cortisol, and high urine 17-hydroxy-...
Tuesday, November 5, 2013

Pituitary Disorders and the Family

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      PNA Webinar Announcement                   Webinar: Pit...
Monday, November 4, 2013

New Chapter of my Life

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Hey everyone! I've missed you all. It's not that I haven't. I just haven't even able to keep up on posting like I wish ...
Saturday, November 2, 2013

BLA takes a Patient from Cushing's to Addison's

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Adrenal crisis in treated Addison's disease: a predictable but under-managed event Katherine White  and Wiebke Arlt 1 Addison's Dise...

Patient Access to Current Medical Literature

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File this one under Learn Something New Every Day.  To me, this is a BIG SOMETHING. Doing research? Do you want to read a recent article?  T...
Monday, October 28, 2013

Reading your Rx

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I'm in the midst of updating my massive medication list, as I am going to see my Cushing's specialist today.  It occurred to me that...
Thursday, October 10, 2013

SIGN THE PETITION: We deserve better than Solu Cortef

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Cushies deserve a better emergency injectable device than the one option we have in Pfizer's Solu Cortef. This medication is used during...
Sunday, October 6, 2013

BLA "relatively safe and provides adequate success"

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I have watched several close friends get bilateral adrenalectomies in the past few months and at least another hundred get BLAs since I lear...
Friday, October 4, 2013

Brimscombe mum's plea for injection pen which could save her little girl’s life

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Yes, we need the Solu-Cortef pen to be easier to dispense. My growth hormone Nutropin is so easy to do. The injectable that saves our life s...

Cortisol: The Hormone Maverick

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Not too many things about Cushing's make me laugh. This lecture title did. Hypercortisolemia: When a Good Hormone Goes Bad http://umhshe...
Saturday, August 3, 2013

Help PCPs Know What How to "Treat" a Cushing's Patient

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treat   [ treet ]   verb   (used   with   object) 1. to   act   or   behave   toward   (a   person)   in   some   specified   way:  ...
Thursday, August 1, 2013

Pituitary damage an unexpected war wound

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I have noticed the news stories and court cases of enlisted soldiers beating and killing their loved ones after returning from Iraq and Afgh...
Thursday, July 25, 2013

Cushing's patients will have global access to Korlym

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Happy to read this news from today. Go big or go home. --Melissa Disclaimer: I own Corcept stock. See sidebar. Corcept Therapeutics Announce...

Corcept is "Down but Far from Out"

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The competition between Corcept and Novartis will actually provide Cushies with more treatment options after failed surgeries. The marketing...
Thursday, June 20, 2013

AMA declares obesity a disease

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AFP PHOTO/RONALDO SCHEMIDT The American Medical Assn. voted Tuesday to classify obesity as a disease, a decision that should prompt doctors ...