Thursday, October 6, 2011

I'm Back, Giving Testing a Final Go

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Hi to everyone.  I thank all of you for reading along and for all the letters.  I will write back soon. If I don't reply, please ...
Monday, June 6, 2011

PARTICIPATE: Quality of Life Survey

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I encourage every Cushing's patient to complete this National Institutes for Health survey* regarding quality of life. We must seize the...
Thursday, May 19, 2011

Glimmer of Hope: Delayed Remission

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Thank you to my Cushie friend Debra for sharing this article.  You gotta believe. ~m Delayed Remission after Transsphenoidal Surgery in Pati...

Why Obesity Is A Disease

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Preach it. I totally agree.  SCOTT KAHAN, M.D.: Why Obesity Is A Disease Obesity is a chronic medical condi...
Wednesday, May 18, 2011

Dumb da Dumb Dumb..... DUMB!!!!

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This is what it sounds like when the President of the National Honor Society cries. Whaaaaa waaaaaaaaaa whaaaaaa waaaaaaaaaa "Cognitiv...
Monday, May 16, 2011

CUSHING’S: Relentless and Nefarious

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I am 27 days post op for my second pituitary surgery. I had blood work done on post op day 16 after withholding for 24 hours, aka skipping m...
Saturday, May 7, 2011

Obesity Research: Consequences vs. Causes

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Obesity is bad, we get that The Guardian "People tend not to believe that a medical condition can cause weight gain, but the little-kno...
Thursday, May 5, 2011

This is your Life.

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Cushing’s Syndrome during Pregnancy

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EXTENSIVE CLINICAL EXPERIENCE Cushing’s Syndrome during Pregnancy: Personal Experience and Review of the Literature Cushing’s syndrome (CS) ...
Wednesday, May 4, 2011

Addison's Disease Poses Risks To Patients

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I am so happy to see this article.  Addison's is the opposite of Cushing's. Addison's results from low cortisol levels, and Cush...

Hair Samples: Better Testing

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My endocrinologist in Los Angeles has been working on a similar study here in the US.  I hope that patients in the future will not have to u...

Cushing's Disease: Unraveling a Medical Mystery

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I found this video tonight when doing some research online. You know you will be sick a while when your disease is called a "medical my...

Recovery: Post Op Day 14

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Hi everyone.  I felt pretty good up until yesterday.  Luckily, I had a follow up appointment with my endocrinologist who diagnosed me with C...

93 Years Old and Still Dancing

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I found this while researching low sodium levels. I like this lady. This made me smile. New York Times' article: Doctors Say Don't...

Cushing's in the News

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This beautiful and sweet gal had the same pituitary surgery as I did two weeks ago. Dramatic difference in appearance. She gained 70 pounds....
Wednesday, April 27, 2011

Think Like a Doctor: A Litany of Symptoms Solved! - NYTimes.com

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Thank you to Dr. Sanders and the New York Times for shining a spotlight on Cushing's patients and offering a different perspective for t...

Think Like a Doctor: A Litany of Symptoms - NYTimes.com

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This is so much fun -and so important to get the word out. Plus, this shows how much a patient suffers while them doctors fail to diagnose a...

Push to spur more drugs for deadly rare diseases

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I want my government to spend money helping its citizens. I hope to see more of these partnerships with the public and private sectors. The ...
Tuesday, April 26, 2011

And You Thought I Was Pitiful Before...

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Day 5 post op. Monday Blood draw to check electrolytes and cortisol/ACTH after keeping medicine that will save my life!! away from me for 24...
Monday, April 25, 2011

Endocrine-Disrupting Chemicals

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I think this is one reason Cushing's is more common than it used to be. Watch your endocrine disruptors, friends. - m Pediatricians Call...

Corticosteroids conversion calculator (hydrocortisone, dexamethasone, prednisone, methylprednisolone, betamethasone

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I needed one of these in the hospital. Excellent resource. http://www.globalrph.com/corticocalc.htm

Worthless hospital pain scale thingee

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I got the pain scale question constantly. I was confused every time! What to say? How to convey--make me feel better!! Too bad I forgot to p...

Post op day 4

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2nd pituitary surgery April 20, 2011 Day 4 post op April 24, 2011 Hydrocortisone (HC is generic, I pay extra for brand Cortef) dose: 20 mg...
Saturday, April 23, 2011

Saturday update: oUT!!!

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Out of the hospital. Dropping off rxs now, one for pain (vicodin), another for nausea (zofran).   I picked up my iphone for the first time a...

It's, tumorless Melissa, making a report

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I have been discharged, and we are waiting for transport to wheel me down to the car. I'm okay. Ready to sleep at home. Surgery looks l...

Day 3 post-op update

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We are waiting to get discharge clearance from internal medicine for the Diabetes Insipitis and then the neuro should write the discharge or...
Wednesday, April 20, 2011

Bedside update

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With Melissa now in recovery, the good news is she feels awful! This is a good sign that maybe the cushing's is gone with that tumor. Sh...

One 4mm tumor successfully removed!

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Melissa is in recovery and the doctor said he was able to remove a 4-5mm tumor from the right side of the glad! No csf leaks or other compli...

Surgery is done... waiting for update

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The doctor just finished the operation. Waiting for him to come out and fill in the details now. I'll post more info as I get it.

Pit tumor part deux - update

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Nurse just updated us... Melissa is stable and doing well. Doctor is still operating and will update us with what he finds when finished.

Procedure underway

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Melissa was wheeled back into surgery about 1 hour ago at 7:45 CST. First update due at around 10 AM CST.

Queue?

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We made it here 10 minutes before report time of 5:15 am. I'm standing in a line with 7 people ahead of me... All of us waiting to check...

Onward!

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Here we go! I just jumped online to schedule an appointment for my 5 day 8am blood draw, so I thought I would say HELLO! I am super excited ...
Tuesday, April 19, 2011

Tumor Willis & any Annoying Sister-- BE GONE

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04-20-2011. Surgery schedule. 2nd pituitary surgery. MD Anderson Cancer Center with IMCC (neurosurgeon Ian McCutcheon) ********* 3:00 am. ...
Sunday, April 17, 2011

CUSHING'S AWARENESS: *Again*

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Well, it's that time again. I am three days away from my second pituitary surgery. Let's hope the neurosurgeon gets all the trouble ...
Saturday, April 9, 2011

A Glimpse of Cushings.. by the numbers!

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Thanks to Beth for creating this poll for us!   A Glimpse of Cushings.. by the numbers! by Beth Grant on Friday, April 8, 2011 at 9:38pm ...