Cushing's with Moxie: Fighting The Worst Disease You've Never Heard Of

“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity

Wednesday, May 4, 2011

Addison's Disease Poses Risks To Patients

I am so happy to see this article. Addison's is the opposite of Cushing's. Addison's results from low cortisol levels, and Cush...

Hair Samples: Better Testing

My endocrinologist in Los Angeles has been working on a similar study here in the US. I hope that patients in the future will not have to u...

Cushing's Disease: Unraveling a Medical Mystery

I found this video tonight when doing some research online. You know you will be sick a while when your disease is called a "medical my...

Recovery: Post Op Day 14

Hi everyone. I felt pretty good up until yesterday. Luckily, I had a follow up appointment with my endocrinologist who diagnosed me with C...

93 Years Old and Still Dancing

I found this while researching low sodium levels. I like this lady. This made me smile. New York Times' article: Doctors Say Don't...

Cushing's in the News

This beautiful and sweet gal had the same pituitary surgery as I did two weeks ago. Dramatic difference in appearance. She gained 70 pounds....

Wednesday, April 27, 2011

Think Like a Doctor: A Litany of Symptoms Solved! - NYTimes.com

Thank you to Dr. Sanders and the New York Times for shining a spotlight on Cushing's patients and offering a different perspective for t...

Think Like a Doctor: A Litany of Symptoms - NYTimes.com

This is so much fun -and so important to get the word out. Plus, this shows how much a patient suffers while them doctors fail to diagnose a...

Push to spur more drugs for deadly rare diseases

I want my government to spend money helping its citizens. I hope to see more of these partnerships with the public and private sectors. The ...

Tuesday, April 26, 2011

And You Thought I Was Pitiful Before...

Day 5 post op. Monday Blood draw to check electrolytes and cortisol/ACTH after keeping medicine that will save my life!! away from me for 24...

Monday, April 25, 2011

Endocrine-Disrupting Chemicals

I think this is one reason Cushing's is more common than it used to be. Watch your endocrine disruptors, friends. - m Pediatricians Call...

Corticosteroids conversion calculator (hydrocortisone, dexamethasone, prednisone, methylprednisolone, betamethasone

I needed one of these in the hospital. Excellent resource. http://www.globalrph.com/corticocalc.htm

Worthless hospital pain scale thingee

I got the pain scale question constantly. I was confused every time! What to say? How to convey--make me feel better!! Too bad I forgot to p...

Post op day 4

2nd pituitary surgery April 20, 2011 Day 4 post op April 24, 2011 Hydrocortisone (HC is generic, I pay extra for brand Cortef) dose: 20 mg...

Saturday, April 23, 2011

Saturday update: oUT!!!

Out of the hospital. Dropping off rxs now, one for pain (vicodin), another for nausea (zofran). I picked up my iphone for the first time a...

It's, tumorless Melissa, making a report

I have been discharged, and we are waiting for transport to wheel me down to the car. I'm okay. Ready to sleep at home. Surgery looks l...

Day 3 post-op update

We are waiting to get discharge clearance from internal medicine for the Diabetes Insipitis and then the neuro should write the discharge or...

Wednesday, April 20, 2011

Bedside update

With Melissa now in recovery, the good news is she feels awful! This is a good sign that maybe the cushing's is gone with that tumor. Sh...

One 4mm tumor successfully removed!

Melissa is in recovery and the doctor said he was able to remove a 4-5mm tumor from the right side of the glad! No csf leaks or other compli...

Surgery is done... waiting for update

The doctor just finished the operation. Waiting for him to come out and fill in the details now. I'll post more info as I get it.

Pit tumor part deux - update

Nurse just updated us... Melissa is stable and doing well. Doctor is still operating and will update us with what he finds when finished.

Procedure underway

Melissa was wheeled back into surgery about 1 hour ago at 7:45 CST. First update due at around 10 AM CST.

Queue?

We made it here 10 minutes before report time of 5:15 am. I'm standing in a line with 7 people ahead of me... All of us waiting to check...

Onward!

Here we go! I just jumped online to schedule an appointment for my 5 day 8am blood draw, so I thought I would say HELLO! I am super excited ...

Tuesday, April 19, 2011

Tumor Willis & any Annoying Sister-- BE GONE

04-20-2011. Surgery schedule. 2nd pituitary surgery. MD Anderson Cancer Center with IMCC (neurosurgeon Ian McCutcheon) ********* 3:00 am. ...

Sunday, April 17, 2011

CUSHING'S AWARENESS: Again

Well, it's that time again. I am three days away from my second pituitary surgery. Let's hope the neurosurgeon gets all the trouble ...

Saturday, April 9, 2011

A Glimpse of Cushings.. by the numbers!

Thanks to Beth for creating this poll for us! A Glimpse of Cushings.. by the numbers! by Beth Grant on Friday, April 8, 2011 at 9:38pm ...

Friday, April 8, 2011

Cushie Warriors

CUSHIE WARRIORS: MEN, WOMEN & CHILDREN WHO BATTLE CUSHING’S NUMEROUS TIMES IN HOPES OF WINNING THE WAR Many of you only know one pers...

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