Wednesday, April 20, 2011

Bedside update

›
With Melissa now in recovery, the good news is she feels awful! This is a good sign that maybe the cushing's is gone with that tumor. Sh...

One 4mm tumor successfully removed!

›
Melissa is in recovery and the doctor said he was able to remove a 4-5mm tumor from the right side of the glad! No csf leaks or other compli...

Surgery is done... waiting for update

›
The doctor just finished the operation. Waiting for him to come out and fill in the details now. I'll post more info as I get it.

Pit tumor part deux - update

›
Nurse just updated us... Melissa is stable and doing well. Doctor is still operating and will update us with what he finds when finished.

Procedure underway

›
Melissa was wheeled back into surgery about 1 hour ago at 7:45 CST. First update due at around 10 AM CST.

Queue?

›
We made it here 10 minutes before report time of 5:15 am. I'm standing in a line with 7 people ahead of me... All of us waiting to check...

Onward!

›
Here we go! I just jumped online to schedule an appointment for my 5 day 8am blood draw, so I thought I would say HELLO! I am super excited ...
Tuesday, April 19, 2011

Tumor Willis & any Annoying Sister-- BE GONE

›
04-20-2011. Surgery schedule. 2nd pituitary surgery. MD Anderson Cancer Center with IMCC (neurosurgeon Ian McCutcheon) ********* 3:00 am. ...
Sunday, April 17, 2011

CUSHING'S AWARENESS: *Again*

›
Well, it's that time again. I am three days away from my second pituitary surgery. Let's hope the neurosurgeon gets all the trouble ...
Saturday, April 9, 2011

A Glimpse of Cushings.. by the numbers!

›
Thanks to Beth for creating this poll for us!   A Glimpse of Cushings.. by the numbers! by Beth Grant on Friday, April 8, 2011 at 9:38pm ...
Friday, April 8, 2011

Cushie Warriors

›
CUSHIE WARRIORS: MEN, WOMEN & CHILDREN WHO BATTLE CUSHING’S NUMEROUS TIMES IN HOPES OF WINNING THE WAR Many of you only know one pers...
Sunday, April 3, 2011

Fundraising Efforts

›
I created this ticker to show us how close we are getting to the goal of raising funds to support Cushings-Help.com. This is my first t...

Fundraising for Cushing's Awareness Month

›
APRIL IS CUSHING’S AWARENESS MONTH Exactly four years ago in 2007, I cried at home after receiving a call from the doctor's office.  T...

UPCOMING PITUITARY SURGERY SCHEDULED

›
Hello to all of you still following along. I wanted to tell all y'all some big news. I have been diagnosed with cushing's disease ag...
Monday, March 7, 2011

Low Expectations, Contracts, and All Types of Feasances

›
When a patient visits a doctor, s/he does so with a certain expectation. The patient recognizes the schooling and degrees the doctor ho...

Totally and Utterly Preposterous

›
One of the main reasons I spend my time to write the blog is to generate awareness about Cushing's.  Patients like me will continue to s...
Wednesday, March 2, 2011

Power Users: Enough Said

›
Thank you to my sweet friend Rev Kev for passing along this article, and saying, "Ok so Melissa was not mentioned by name, but the prof...
Saturday, February 26, 2011

Harvey Cushing: Rocking Modern Medicine

›
Famed neurosurgeon's century-old notes reveal 'modern' style admission of medical error Science Centric 22 February 2011 23:32 G...
Friday, February 25, 2011

Pay No Attention to the Girl Behind the Smile

›
There are so many things I wish people knew about me but I won’t say, because you don’t ask; and when you do, you’re not truly listening. --...
Thursday, February 24, 2011

Sleep

›
See and download the full gallery on posterous

Cushing's: Disease of the Night

›
Cushing's is a disease of the night. Fluctuating cortisol levels keep our bodies captive in a sleepless cave: one night, we may find sle...

Hospital Pain Scale

›
This is the best thing I have read in a looonnnnggg time. I plan to tape it to my rolling table bridge over my lap thing while I'm in th...
Wednesday, February 23, 2011

Plop Plop Fizz Fizz: Oh What a Relief It Is

›
I have some very good, very personal news to share!! I wrote an email to my LA endocrinologist, cc:ing the neurosurgeon. It's easier to ...
Tuesday, February 22, 2011

PNA Webinar: "Thoughts, Feelings, and Behavior: What does the Pituitary Have to do with These?" - Library - Article | Pituitary Network Association

›
Many people watching the physical demise of a Cushing's patient may believe that the struggle to diagnosis makes us depressed. While tha...

Cortisol Levels, Thyroid Function and Aging

›
Thank you to my dear Cushie friend Cyndie for this excellent find. *  * * * * * * * * * * HOW CORTISOL LEVELS AFFECT THYROID FUNCTION AND AG...
Sunday, February 20, 2011

DENTAL WORK: Thanks a lot, Cushing's!

›
I am having a lot of dental problems. Just went to the dentist this past Monday. She was showing me cracked teeth, chipped teeth, broken cr...
Saturday, February 19, 2011

2009 article on Cyclical Cushing's

›
A member of the message boards shares this article yesterday. Thank you! Lower cure rates, lower adenoma id, older patients, longer follow-u...

BlogTalkRadio with Dr. Friedman

›
Struggling with Cushing's? Undiagnosed but your gut says you have it? Post op pituitary surgery? Persistent Cushing's and sti...
Thursday, February 3, 2011

Spinning Out of Control

›
I am pleased to see more and more articles about Cushing's on the internet. I repost them here, hoping that someone will see themselves ...
Wednesday, February 2, 2011

New Testing Protocol is Needed

›
Are you struggling to get diagnosed?  Is your doctor refusing to order any more cortisol tests because the ones you have had came back norma...