Sunday, April 3, 2011

Fundraising Efforts

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I created this ticker to show us how close we are getting to the goal of raising funds to support Cushings-Help.com. This is my first t...

Fundraising for Cushing's Awareness Month

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APRIL IS CUSHING’S AWARENESS MONTH Exactly four years ago in 2007, I cried at home after receiving a call from the doctor's office.  T...

UPCOMING PITUITARY SURGERY SCHEDULED

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Hello to all of you still following along. I wanted to tell all y'all some big news. I have been diagnosed with cushing's disease ag...
Monday, March 7, 2011

Low Expectations, Contracts, and All Types of Feasances

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When a patient visits a doctor, s/he does so with a certain expectation. The patient recognizes the schooling and degrees the doctor ho...

Totally and Utterly Preposterous

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One of the main reasons I spend my time to write the blog is to generate awareness about Cushing's.  Patients like me will continue to s...
Wednesday, March 2, 2011

Power Users: Enough Said

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Thank you to my sweet friend Rev Kev for passing along this article, and saying, "Ok so Melissa was not mentioned by name, but the prof...
Saturday, February 26, 2011

Harvey Cushing: Rocking Modern Medicine

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Famed neurosurgeon's century-old notes reveal 'modern' style admission of medical error Science Centric 22 February 2011 23:32 G...
Friday, February 25, 2011

Pay No Attention to the Girl Behind the Smile

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There are so many things I wish people knew about me but I won’t say, because you don’t ask; and when you do, you’re not truly listening. --...
Thursday, February 24, 2011

Sleep

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See and download the full gallery on posterous

Cushing's: Disease of the Night

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Cushing's is a disease of the night. Fluctuating cortisol levels keep our bodies captive in a sleepless cave: one night, we may find sle...

Hospital Pain Scale

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This is the best thing I have read in a looonnnnggg time. I plan to tape it to my rolling table bridge over my lap thing while I'm in th...
Wednesday, February 23, 2011

Plop Plop Fizz Fizz: Oh What a Relief It Is

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I have some very good, very personal news to share!! I wrote an email to my LA endocrinologist, cc:ing the neurosurgeon. It's easier to ...
Tuesday, February 22, 2011

PNA Webinar: "Thoughts, Feelings, and Behavior: What does the Pituitary Have to do with These?" - Library - Article | Pituitary Network Association

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Many people watching the physical demise of a Cushing's patient may believe that the struggle to diagnosis makes us depressed. While tha...

Cortisol Levels, Thyroid Function and Aging

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Thank you to my dear Cushie friend Cyndie for this excellent find. *  * * * * * * * * * * HOW CORTISOL LEVELS AFFECT THYROID FUNCTION AND AG...
Sunday, February 20, 2011

DENTAL WORK: Thanks a lot, Cushing's!

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I am having a lot of dental problems. Just went to the dentist this past Monday. She was showing me cracked teeth, chipped teeth, broken cr...
Saturday, February 19, 2011

2009 article on Cyclical Cushing's

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A member of the message boards shares this article yesterday. Thank you! Lower cure rates, lower adenoma id, older patients, longer follow-u...

BlogTalkRadio with Dr. Friedman

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Struggling with Cushing's? Undiagnosed but your gut says you have it? Post op pituitary surgery? Persistent Cushing's and sti...
Thursday, February 3, 2011

Spinning Out of Control

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I am pleased to see more and more articles about Cushing's on the internet. I repost them here, hoping that someone will see themselves ...
Wednesday, February 2, 2011

New Testing Protocol is Needed

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Are you struggling to get diagnosed?  Is your doctor refusing to order any more cortisol tests because the ones you have had came back norma...
Saturday, January 29, 2011

Meditate vs. Surgery?

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This article does a good job of describing what happens to a society that is stressed out. Mediation may help many. For a patient with Cushi...

Brains at Yale Get Spruced Up

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Love this! Dr. Harvey Cushing and his awesome brain collection are getting their rightful place at Yale. I can't wait to get better and...
Thursday, January 27, 2011

Obese American goes to India for gastric bypass; doctors find brain tumor

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http://fortishospitals.wordpress.com/2011/01/25/diagnosed-for-obesity-surgery...

Plain ol' Obesity or Cushing's?

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Weight loss surgery is not for everyone. If you have Cushing's, the docs are jacking with the wrong organ. That will definitely NOT make...
Saturday, January 22, 2011

Fighting Fire with Fire? Just leave me alone!

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My knees have been burning so much today. I sit in a chair, with my legs bending naturally at the knee and hanging down. The muscles on the ...
Thursday, January 20, 2011

Doctors unlikely to spot Cushing's

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That degree on the wall means your physician graduated medical school. It DOES NOT tell you which ones made As and which ones made Ds. --mm ...

Anxiety and Endocrine Disease

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This is a fascinating literature review about the classic chicken-and-egg debate for endocrine patients. Doctors insist my depression, weigh...
Wednesday, January 19, 2011

Fitness fanatic goes from size 10 to 18 in weeks after pituitary gland tumour | Mail Online

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Do you see your story when reading Kathryn's? http://www.dailymail.co.uk/health/article-1348504/Fitness-fanatic-goes-size-1...
Friday, January 14, 2011

Trip Recap

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So much has happened in the last few days. I'm on the plane with 30 minutes left in my 3 hr non stop flight home. Cloud cover prevents m...
Monday, January 10, 2011

Making Good Use of our Time Away

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If we have to spend thousands of dollars to travel to see Cushing's specialists, we should at least have some fun while we are at it. I...

Life as a Cushie

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I am starting a series, like a photo essay, trying to explain how Cushing's impacts my daily life. Today, I point out that the seat belt...

See? Flying High

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Life as a Cushie

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Heading for Help

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I am sitting on a plane, headed to Los Angeles, CA. I hope that my search for a compassionate and knowledgeable doctor will end with my appo...
Sunday, January 9, 2011

GET YOUR LABS THROUGH AN APP :)

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I have a major issue with testing all the time for Cushing's. Besides the obvious hassle of *having* to test so much to prove that I am ...
Saturday, January 8, 2011

HERstory: A look back

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I wanted to share a post I wrote nearly one year ago. The  HerStory post shows my previous collage and how to make one for yourself. ~Moxi...

Change's a-Comin'

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You may notice that some recent posts are short and look different from my previous entries.  That's because I found a way to post to th...
Friday, January 7, 2011

Erella's Story

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Erella, who is featured in the last post, also has a one hour CBC 1999 documentar y about her and her  introducti on to the cushings world. ...

Cushing's documentary

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Check out Erella's 30 minute documentary featuring her battle with Cushing's. http://www.erella.com/Video_Lightbox/index.html

SOS: Help a Cushie

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26-year old Kathryn would like to hear from anyone with the same condition. She can be contacted by e-mailing kathrynanne1984@hotmail.co.uk ...
Thursday, January 6, 2011

New test for the Growth Hormone Deficient?

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AEterna Zentaris, Inc. (Nasdaq:AEZS) announced that it has reached agreement with the Food and Drug Administration (FDA) on a Special Protoc...
Saturday, November 13, 2010

GUEST POST: Best Kept Secret in Medicine

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Sharmyn McGraw emailed this last week. You can read my previous posts about Sharmyn for some of the best info we have about Cushing's--...