Wednesday, January 19, 2011

Fitness fanatic goes from size 10 to 18 in weeks after pituitary gland tumour | Mail Online

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Do you see your story when reading Kathryn's? http://www.dailymail.co.uk/health/article-1348504/Fitness-fanatic-goes-size-1...
Friday, January 14, 2011

Trip Recap

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So much has happened in the last few days. I'm on the plane with 30 minutes left in my 3 hr non stop flight home. Cloud cover prevents m...
Monday, January 10, 2011

Making Good Use of our Time Away

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If we have to spend thousands of dollars to travel to see Cushing's specialists, we should at least have some fun while we are at it. I...

Life as a Cushie

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I am starting a series, like a photo essay, trying to explain how Cushing's impacts my daily life. Today, I point out that the seat belt...

See? Flying High

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Life as a Cushie

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Heading for Help

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I am sitting on a plane, headed to Los Angeles, CA. I hope that my search for a compassionate and knowledgeable doctor will end with my appo...
Sunday, January 9, 2011

GET YOUR LABS THROUGH AN APP :)

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I have a major issue with testing all the time for Cushing's. Besides the obvious hassle of *having* to test so much to prove that I am ...
Saturday, January 8, 2011

HERstory: A look back

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I wanted to share a post I wrote nearly one year ago. The  HerStory post shows my previous collage and how to make one for yourself. ~Moxi...

Change's a-Comin'

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You may notice that some recent posts are short and look different from my previous entries.  That's because I found a way to post to th...
Friday, January 7, 2011

Erella's Story

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Erella, who is featured in the last post, also has a one hour CBC 1999 documentar y about her and her  introducti on to the cushings world. ...

Cushing's documentary

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Check out Erella's 30 minute documentary featuring her battle with Cushing's. http://www.erella.com/Video_Lightbox/index.html

SOS: Help a Cushie

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26-year old Kathryn would like to hear from anyone with the same condition. She can be contacted by e-mailing kathrynanne1984@hotmail.co.uk ...
Thursday, January 6, 2011

New test for the Growth Hormone Deficient?

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AEterna Zentaris, Inc. (Nasdaq:AEZS) announced that it has reached agreement with the Food and Drug Administration (FDA) on a Special Protoc...
Saturday, November 13, 2010

GUEST POST: Best Kept Secret in Medicine

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Sharmyn McGraw emailed this last week. You can read my previous posts about Sharmyn for some of the best info we have about Cushing's--...
Friday, October 29, 2010

RIP Janet

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Rest in peace, dear Janet. My heart breaks for Jennie, Janet, and their entire family. I am sorry for your loss, and I am sorry that the...
Sunday, August 29, 2010

Collection of Cancerous Brains Helps Show Neurosurgery’s Rise

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Super New York Times article about Dr. Harvey Cushing's collection of brains in jars, now housed in the Cushing Center at Yale. Homage ...
Sunday, August 8, 2010

Apathy and Pituitary Disease: It Has Nothing to Do With Depression

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For the regular readers of this blog, you know that I may be more bothered by my languishing mental acuity than changes to my body. As my pr...

OH YEAH: There was one other time I felt skinny

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Cushing's and its related hormonal imbalances have led me to gain 100 pounds in about 5 years. That's difficult on a self-esteem. Re...

WANNA LOOK LITTLE: Get next to something bigger!

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Some days, I don't care. I am going to do something fun. When I saw this hippo in a small Texas town, I knew the hippo people put those ...
Saturday, August 7, 2010

Tell me all about yourself

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Hi there. Soooo much has happened, and I am really late getting all of it posted here. In the meantime, I found something I wrote back in 2...
Saturday, July 17, 2010

Pay No Attention to the Girl Behind the Smile

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I thank Christine for highlighting the struggle folks with chronic diseases face each day. Frankly, it's why I choose to stay home most ...
Friday, July 2, 2010

AFTER CUSHING'S: Wish and Do List

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I have become so discouraged lately. I am really at my wit's end. No tumor on my 3T pituitary MRI this past Tuesday. Biochemical evidenc...
Wednesday, June 30, 2010

Irreversible Effects of Previous Cortisol Excess on Cognitive Functions in Cushing’s Disease

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I am thankful to have found Laika's MedLibLog: A medical librarians exploration of the web 2.0 world and beyond. I find this April 201...
Monday, June 28, 2010

Korlym: New Medication in Clinical Trials to treat Cushing's

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Wouldn't this be interesting if this could really help some people. ~m Corcept Therapeutics Nears Completion of Enrollment in Phase 3...
Sunday, June 27, 2010

Scott Hamilton: Pituitary Patient & Advocate

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Ice Skater Scott Hamilton Undergoes Brain Surgery, People.com Olympic champ Scott Hamilton underwent brain surgery Wednesday to remove the...

Heavy health burden: Fat but not my fault

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The lovely and lively Sharmyn McGraw is the founder of Hormones411.com and an omnipresent Cushing's activist. Sharmyn's winding ...

What You Must Know about Adrenal Crisis

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I just found this page of VERY IMPORTANT information about adrenal crisis that Cushing's patients often face, either after pituitary sur...
Saturday, June 26, 2010

Did You Know You Have a Bill of Rights as a Patient?

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 I encourage all of you to join and/or donate money to the Pituitary Network Association.  The serious tone is appreciated, and I always fel...
Tuesday, June 15, 2010

Adrenal Crisis Letter

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When multiple pituitary surgeries fail to resolve the symptoms, Cushing's patients often have to move forward by having an operation to ...

COOL DIAGRAM & DOCTORS SHARE WHAT THEY KNOW WITH PATIENTS

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Hi everyone. I have been doing a lot of research online, and I want to share some of my findings. With a disease this complex, there is a...
Friday, April 23, 2010

CUSHIES SET THE RECORD STRAIGHT: Patients Become the Experts without the MD

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Patients know more than most doctors do about Cushing's. I was tickled pink to find this Google Knol page on Cushing's Disease/Syn...
Thursday, April 22, 2010

Cushing's Awareness Month: What People Need to Know

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April 8th is Harvey Cushing's birthday. I pay hommage to the good doctor here , so I want to move on to my latest finds. While I didn...
Saturday, January 30, 2010

What would you say YES to if you weren't always saying NO?

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Late last night, when we usually head to sleep due to the exhaustion of our days, my husband went to HBO on Demand unannounced and selected ...