Saturday, June 26, 2010

Did You Know You Have a Bill of Rights as a Patient?

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 I encourage all of you to join and/or donate money to the Pituitary Network Association.  The serious tone is appreciated, and I always fel...
Tuesday, June 15, 2010

Adrenal Crisis Letter

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When multiple pituitary surgeries fail to resolve the symptoms, Cushing's patients often have to move forward by having an operation to ...

COOL DIAGRAM & DOCTORS SHARE WHAT THEY KNOW WITH PATIENTS

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Hi everyone. I have been doing a lot of research online, and I want to share some of my findings. With a disease this complex, there is a...
Friday, April 23, 2010

CUSHIES SET THE RECORD STRAIGHT: Patients Become the Experts without the MD

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Patients know more than most doctors do about Cushing's. I was tickled pink to find this Google Knol page on Cushing's Disease/Syn...
Thursday, April 22, 2010

Cushing's Awareness Month: What People Need to Know

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April 8th is Harvey Cushing's birthday. I pay hommage to the good doctor here , so I want to move on to my latest finds. While I didn...
Saturday, January 30, 2010

What would you say YES to if you weren't always saying NO?

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Late last night, when we usually head to sleep due to the exhaustion of our days, my husband went to HBO on Demand unannounced and selected ...
Monday, January 18, 2010

HERSTORY: Seeing Yourself in a New Way

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From the bitterness of disease, man learns the sweetness of health.        - Catalan Proverb  I am preparing a new patient packe...
Sunday, January 17, 2010

HOW WOULD IT FEEL TO HAVE ADDISON'S: Wondering about life after a BLA

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I have mentioned that I am facing a Cushing's reoccurrence. I have to make the difficult decision: try a second pituitary surgery or g...

WHY CUSHING'S MAY NOT BE AS RARE AS THEY THOUGHT: Check your Cookware and Your Chemical Neighbors

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I've had this post percolating in my Draft box for a while. I was prompted to post it immediately because of a post I saw tonight on the...
Thursday, January 14, 2010

SUSPICIOUS MINDS: The King of Rock & Roll had Cushing's?

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What if we could sing this to our doctors: "Why can't you see What you're doing to me When you don't believe a word I s...
Wednesday, January 13, 2010

I'M JUST GONNA SAY IT

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I did midnight testing for Cushing's on December 8 and 9, 2009. My midnight cortisol serum results were high. Both days. Normal leve...
Saturday, January 9, 2010

Test Results, Schmest Schresults

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Well, I finally got my greedy little hands on my test results. January 6, 2010. My tests were run December 7-10, 2009. I can't organize ...

Patients With Mild Cushing Syndrome May Benefit From Adrenalectomy

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I found this article. A little dated but shows that some Texas endocrinologists recognize early to mild Cushing's. Yahoo for the DFW C...
Thursday, December 17, 2009

REOCCURRENCE: Hard to know for sure

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I wanted to take a minute to update y'all on my progress post op. There has been so much that happened. First off, the best thing I can...
Sunday, December 6, 2009

DEPRESSION: Are you more than just sad or down?

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I was up late on the computer, organizing years of digital photos. While watching TV, I was intrigued by a commercial I saw. It was along th...
Saturday, December 5, 2009

FAQ U: MELISSA'S MAIL BAG

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Sue left me a message on my favorite ">Tips to Get Diagnosed Quickly post. She asks such good questions that I decided to answer th...