Cushing's with Moxie: Fighting The Worst Disease You've Never Heard Of

“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity

Monday, January 18, 2010

HERSTORY: Seeing Yourself in a New Way

From the bitterness of disease, man learns the sweetness of health. - Catalan Proverb I am preparing a new patient packe...

Sunday, January 17, 2010

HOW WOULD IT FEEL TO HAVE ADDISON'S: Wondering about life after a BLA

I have mentioned that I am facing a Cushing's reoccurrence. I have to make the difficult decision: try a second pituitary surgery or g...

WHY CUSHING'S MAY NOT BE AS RARE AS THEY THOUGHT: Check your Cookware and Your Chemical Neighbors

I've had this post percolating in my Draft box for a while. I was prompted to post it immediately because of a post I saw tonight on the...

Thursday, January 14, 2010

SUSPICIOUS MINDS: The King of Rock & Roll had Cushing's?

What if we could sing this to our doctors: "Why can't you see What you're doing to me When you don't believe a word I s...

Wednesday, January 13, 2010

I'M JUST GONNA SAY IT

I did midnight testing for Cushing's on December 8 and 9, 2009. My midnight cortisol serum results were high. Both days. Normal leve...

Saturday, January 9, 2010

Test Results, Schmest Schresults

Well, I finally got my greedy little hands on my test results. January 6, 2010. My tests were run December 7-10, 2009. I can't organize ...

Patients With Mild Cushing Syndrome May Benefit From Adrenalectomy

I found this article. A little dated but shows that some Texas endocrinologists recognize early to mild Cushing's. Yahoo for the DFW C...

Thursday, December 17, 2009

REOCCURRENCE: Hard to know for sure

I wanted to take a minute to update y'all on my progress post op. There has been so much that happened. First off, the best thing I can...

Sunday, December 6, 2009

DEPRESSION: Are you more than just sad or down?

I was up late on the computer, organizing years of digital photos. While watching TV, I was intrigued by a commercial I saw. It was along th...

Saturday, December 5, 2009

FAQ U: MELISSA'S MAIL BAG

Sue left me a message on my favorite ">Tips to Get Diagnosed Quickly post. She asks such good questions that I decided to answer th...

Tuesday, October 13, 2009

REST IN PEACE: 46 year old Bonnie lost to Cushing's

This blog post is posted from Cushing's & Cancer. Thank you for sharing this with all of us, MaryO. I did not know Bonnie personall...

Sunday, October 11, 2009

STARS GO BLUE: The Omnipresent Threat and the Aftermath of Cushing's

* Would you know what to do if your child had Cushing's? Jackie, Sam's mom says: "It happened in early August, and quite frankl...

Thursday, October 8, 2009

Fighting My Way Out of the Funk

I'm sorry. I haven't been posting here. I realized I didn't want to share any bad news. People don't expect that from me. P...

Wednesday, July 22, 2009

FOLLOW-UP: It's Back to San Antonio

Hi. I don't have much to say except that I am heading back to San Antonio on Thursday for follow-up appointments with my endocrinologist...

Friday, July 17, 2009

TESTING PHOTO UPLOADS FROM MY PHONE

05/10/2009: Elena on our first Mothers Day together. I know that if I didn't have Cushing's, I wouldn't have Elena. She is the ...

I'M FAT, I'M FAT, I KNOW IT: Outreach to the Weight Loss Community

** As many of you know, it is my hope that we can inform the populace about Cushing's disease and hopefully improve the quality of lives...

Thursday, July 16, 2009

ORGANIZATION MOXIE: Where the Rubber Meets the Road

Hi everyone. The wean is slow but going okay. I am 5 weeks post op today. My dose of hydrocortisone is 15 mg @ 8 am and 5 mg @ 3 pm. I see m...

Friday, July 10, 2009

WHITE ON RICE: Get Your Test Results from your Doctors

Are you one of the people who still believe your doctor is always looking out for you? Naaah... really? They try, but the docs and their st...

NAPS: The Search for the Ultimate Afternoon Delight

I started napping for the first time since my pituitary surgery four weeks ago. It started this past Tuesday, when I dropped my dose of hyd...

WISE WORDS WORTH (W)REPEATING

I found this in a stack of papers. I can't find who wrote this? Was it Linda or Kate or MaryO? If you know, please tell me. I want to...

Monday, July 6, 2009

HEAR YE, HEAR YE: Patients Talk about Life with Cushing's

* You can read about Cushing's. This blog and many other websites offer the text version of this devastating disease. Hearing people wh...

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