Cushing's with Moxie: Fighting The Worst Disease You've Never Heard Of

“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity

Wednesday, July 22, 2009

FOLLOW-UP: It's Back to San Antonio

Hi. I don't have much to say except that I am heading back to San Antonio on Thursday for follow-up appointments with my endocrinologist...

Friday, July 17, 2009

TESTING PHOTO UPLOADS FROM MY PHONE

05/10/2009: Elena on our first Mothers Day together. I know that if I didn't have Cushing's, I wouldn't have Elena. She is the ...

I'M FAT, I'M FAT, I KNOW IT: Outreach to the Weight Loss Community

** As many of you know, it is my hope that we can inform the populace about Cushing's disease and hopefully improve the quality of lives...

Thursday, July 16, 2009

ORGANIZATION MOXIE: Where the Rubber Meets the Road

Hi everyone. The wean is slow but going okay. I am 5 weeks post op today. My dose of hydrocortisone is 15 mg @ 8 am and 5 mg @ 3 pm. I see m...

Friday, July 10, 2009

WHITE ON RICE: Get Your Test Results from your Doctors

Are you one of the people who still believe your doctor is always looking out for you? Naaah... really? They try, but the docs and their st...

NAPS: The Search for the Ultimate Afternoon Delight

I started napping for the first time since my pituitary surgery four weeks ago. It started this past Tuesday, when I dropped my dose of hyd...

WISE WORDS WORTH (W)REPEATING

I found this in a stack of papers. I can't find who wrote this? Was it Linda or Kate or MaryO? If you know, please tell me. I want to...

Monday, July 6, 2009

HEAR YE, HEAR YE: Patients Talk about Life with Cushing's

* You can read about Cushing's. This blog and many other websites offer the text version of this devastating disease. Hearing people wh...

DEATH BY CUSHING'S: Accidental death verdict on 40-year-old mum

* It is with a heavy heart that I share this story today about an unnecessary death, due to Cushing's. I send my most sincere condolence...

Saturday, July 4, 2009

DEPRESSED: Withdrawal from steroid cortisol replacement

My body is not making any cortisol on its own. Cushing's disease made my hypothalamus-pituitary-adrenal axis off kilter. Now, I am taki...

Wednesday, July 1, 2009

CARDIAC PADDLE TO THE CHEST: A Letter from the Founder of the Pituitary Network Association

* I have found the Pituitary Network Association to be an incredibly helpful resource. For the undiagnosed, take this letter from its foun...

CUSHING'S: For the new folks

Hi everyone. I am working on a few blog posts that I hope I can post soon. For today, I'd like to spend a minute or two helping some new...

Saturday, June 27, 2009

CUSHING'S DISEASE ENDS MODEL'S CAREER; SHE FINDS BETTER ONE

I have so much respect for Carol Perkins for sharing her story in Ladies Home Journal, the prominent women's magazine. That takes a lot ...

Wednesday, June 24, 2009

FAQ YOU: MELISSA'S MAIL BAG

I wanted to share some questions I've received from someone who is embarking on her testing and diagnostic journey. For me, it is good ...

Saturday, June 20, 2009

FAQ YOU: MELISSA'S MAIL BAG

From Sweet Sue in Houston, through Facebook: Melissa, if you can see this, hope you are doing okay with good thoughts and prayers your way. ...

BUT YOU DON'T LOOK SICK: The Spoon Theory

You may be dropping by to check on me after my surgery. I am doing well. I'll post more soon. For now, I want to take a moment to post...

Friday, June 19, 2009

GIVE ME A P: Why the Pituitary Gland Needs a Cheerleader

From the pituitary center at the Oregon Health and Science University. Very helpful info. Details why pituitary patients suffer for too ling...

Monday, June 15, 2009

Goin' Home

I got released fromthe hospital today around noon. I'm feeling bad but that is a good sign. We are about 50 miles from the house. We get...

Sunday, June 14, 2009

PITUITARY SURGERY: I Did Survive (to be sung like Gloria Gaynor)

*** Hi everyone. Day 4 in the hospital, and I am doing well. I'm really sleepy, so I will post the highest of highlights, then I'll...

Tuesday, June 9, 2009

JFK HAD ADRENAL TROUBLE, TOO!

During our research for Cushing's disease and its post-op counterpart Addison's disease, Jonathan and I have turned the internet ups...

Sunday, June 7, 2009

I LOVE IT WHEN A PLAN COMES TOGETHER

GETTING THE BALL ROLLING I have been focusing on pregnancy, baby Elena, and family for 18 months. She is almost 9 months old now. Elena i...

A LETTER TO FAMILY AND FRIENDS: WHAT A CUSHING'S PATIENT WANTS TO SAY BUT CAN'T

** Although I have made many transitions in the past few years (career to no career, single to married, 1st home to 2nd home, childless to m...

Saturday, June 6, 2009

TAPERING YOUR DOSE OF CORTISOL REPLACEMENT POST OP

I have not actually done the wean itself yet. It comes after pituitary surgery!! I found this helpful in explaining the overall hormone repl...

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