From Sweet Sue in Houston, through Facebook:
Melissa, if you can see this, hope you are doing okay with good thoughts and prayers your way. Let us know if you need something.
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Hi Sue. Thanks for checking on me. You are so sweet. I am doing well. I am trying to write stuff up to post on my Cushing's Moxie blog. I'm trying to get a follow-up email set up, too. People may be wondering how I am, and I don't want them to worry.
I am doing well, better than expected. I have to remind myself though, it is all synthetic. My body is not making cortisol/steroids on its own, and any good feeling now will soon be replaced with severe withdrawal symptoms as they lower my dose of hydrocortisone week by week.
BUT I am happy.
I feel more in control.
Grateful.
Pensive.
Appreciative.
Wistful.
Optimistic to be moving forward.
Happy to be me.
Happy to have my husband, miracle baby, family, and friends.
It's all good. :)
They must have pushed through an extra dose of clarity with my anesthesia last week.
~Cushie Melissa
“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity
Saturday, June 20, 2009
BUT YOU DON'T LOOK SICK: The Spoon Theory
You may be dropping by to check on me after my surgery. I am doing well. I'll post more soon.
For now, I want to take a moment to post a story that many Cushing's patients have accepted as their own. We think about spoons and nod our heads in understanding. Even though we didn't author this story, we feel Christine could be writing about our lives.
Please take a few moments to read Christine Miserandino's personal story. It is an eye-opening look into the life of a person with a chronic sickness or disability.
Especially, I want to say thank you to Christine, from all of us out there suffering from a disease that people don't understand.
Read Christine's Spoon Theory here.
I've also posted a Kate's Letter to Friends and Family that may help foster kindness and understanding for Cushing's patients. You can read that previous post on my blog by clicking here
Happy weekend!
~Cushie Melissa
For now, I want to take a moment to post a story that many Cushing's patients have accepted as their own. We think about spoons and nod our heads in understanding. Even though we didn't author this story, we feel Christine could be writing about our lives.
Please take a few moments to read Christine Miserandino's personal story. It is an eye-opening look into the life of a person with a chronic sickness or disability.
Especially, I want to say thank you to Christine, from all of us out there suffering from a disease that people don't understand.
Read Christine's Spoon Theory here.
I've also posted a Kate's Letter to Friends and Family that may help foster kindness and understanding for Cushing's patients. You can read that previous post on my blog by clicking here
Happy weekend!
~Cushie Melissa